Resources produced by our team include hundreds of papers, peer-reviewed articles, manuals, and other products on a range of topics related to health and social needs services and supports.

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Published Paper: Strategies for Changing State Medicaid Policy to Improve Services to Children with Medical Complexity

Authors Steve Fitton, Meg Comeau

Date 2022

Project CoIIN to Advance Care for CMC

Keywords

This paper introduces a number of existing Medicaid policy instruments and explains how to use them more effectively for programs and providers dedicated to serving CMC. Because Medicaid programs are so variable across the nation, we also provide a diagnostic approach to understanding each state’s Medicaid policy and service delivery system environment. Finally, we offer strategies of different scale to demonstrate how to change policy incrementally from the targeted to transformative.

Resources:

Pathways to Hiring Peer Navigator Staff

Authors Jill McCormick, Washington State Team

Date 2022

Project CoIIN to Advance Care for CMC

Keywords Family Partnership at the Clinical Setting, Washington

A brief look at the benefits of Peer Family Navigation, who may support building it in the community and potential costs.

Resources:

COVID-19 Resources for Children and Youth with Special Health Care Needs Library Archive

Authors

Date 2022

Project Catalyst Center

Keywords Covid-19, CYSHCN, Financing, Medicaid/CHIP

The Catalyst Center curated a collection of COVID-19 resources from numerous reputable organizations on a variety of financing and coverage related topics. This resource library previously was available as a unique page on the Catalyst Center website. In April 2022, the Catalyst Center decided to archive these resources and highlight information related to the end of the COVID-19 Public Health Emergency, available here. The resources in this archive document were last reviewed on April 26, 2022.

CMC CoIIN Convening – State Team Panel Audio Recording

Authors

Date 2022

Project CoIIN to Advance Care for CMC

Keywords Alabama, Colorado, Indiana, Kentucky, Massachusetts, Minnesota, Oregon, Texas, Washington, Wisconsin

Panelists from the 10 CMC CoIIN state teams reflect on their learnings from their quality improvement projects in an interactive panel conversation. 

Resources:

National Care Coordination Academy Recording: June 13, 2022

Authors

Date 2022

Project CoIIN to Advance Care for CMC

Keywords

National Care Coordination Academy teams presented their project’s goals, accomplishments, challenges, and next steps in this final meeting.

Resources:

Washington State Birth to One Program: Building A Strong Foundation – Working With Diverse Families

Authors Washington State Team, Jill McCormick

Date 2022

Project CoIIN to Advance Care for CMC

Keywords Unmet Need, Washington

Reflections on barriers observed for families of color, with cultural and language differences, and ways to mitigate the disparities in care observed based on the interventions tried.

Resources:

Webinar: The Expanded Child Tax Credit: Implications for Families Raising Children and Youth with Special Health Care Needs (CYSHCN)

Authors Catalyst Center

Date 2021

Project Catalyst Center

Keywords CYSHCN, Financial Hardship, Health Equity, Maternal and Child Health

The recent Child Tax Credit (CTC) expansion is expected to improve the economic security of millions of families in the U.S., including families raising children and youth with special health care needs (CYSHCN). While many families will receive the expanded tax credit automatically, others of the most vulnerable families need to take action to access the financial support.

On August 24 at 2pm ET, the Catalyst Center hosted a webinar explaining the expanded CTC and the role that Title V and Family Leader organizations might play in assisting families in accessing this support.

The webinar program featured presentations by Elaine Maag, Principal Research Associate, Tax Policy Center, Urban Institute and Brookings Institution; Stacy Collins, Associate Director, Health Systems Transformation at AMCHP; and Isabel Dickson, Economic Mobility Specialist of the Maternal and Child Health Program at the Colorado Department of Health and Environment. 

Below, you can access a recording of the webinar, presentation slides, and a page of resources related to the expanded CTC. 

The American Rescue Plan Act: Opportunities for Improving Home- and Community-Based Services for Children and Youth with Special Health Care Needs

Authors Allyson Baughman , Caroline Parker

Date 2021

Project Catalyst Center

Keywords Covid-19, CYSHCN, Financing, Medicaid/CHIP

The American Rescue Plan Act (ARPA) was signed into law on March 11, 2021. Provisions in this legislation have the potential to expand and strengthen Home- and Community-Based Services (HCBS) for children enrolled in Medicaid, in turn strengthening the systems of services for children and youth with special health care needs (CYSHCN).

The ARPA gives states the option of receiving extra financial support for providing HCBS to Medicaid beneficiaries. Specifically, the law provides for a 10-percentage point increase in the state’s Federal Medical Assistance Percentage, or FMAP. States must use the additional funds they receive under the ARP FMAP increase to expand and enhance HCBS for Medicaid beneficiaries.

This Catalyst Center explainer provides an overview of the ARPA HCBS provision and its potential implications for CYSHCN.

Quality Improvement to Support the Transition from Pediatric to Young Adult Health Care: Experiences of the Oregon Children with Medical Complexity

Authors Stacy Collins

Date 2021

Project CoIIN to Advance Care for CMC

Keywords Family Leadership in Systems, Oregon

AMCHP newsletter ‘Pulse’ interview 2021 of Oregon CoIIN Implementation team members.

Resources:

Strengthening Title V – Medicaid Managed Care Collaborations to Improve Care for CYSHCN

Authors The National Academy for State Health Policy (NASHP)

Date 2021

Project Catalyst Center

Keywords CYSHCN, Financing, Medicaid/CHIP

Forty-seven states use some form of managed care to serve children and youth with special health care needs (CYSHCN) enrolled in Medicaid. State Title V programs, which are required to use 30 percent of their funds for programs for CYSHCN and their families, may also serve these same children. By working collaboratively, Medicaid agencies, Medicaid managed care organizations (MCOs), and state Title V programs can expand their individual capacities to strengthen the system of services for CYSHCN.

This mini-brief, written in partnership with the National Academy for State Health Policy (NASHP), describes how such partnerships can contribute to reductions in duplication of services, en­hanced care coordination efforts, and the development of cross-agency programmatic supports to meet the physical, social, emotional, behavioral, and socioeconomic needs of Medicaid-enrolled CYSHCN and their families.