With limited means, Pamela Oguagha has been resourceful enough to create a life full of enriching, therapeutic activities for her daughter Taylor, a "typical teenager who happens to have autism." But she finds the process overwhelming.
Eleven-year old Chance’s cochlear implants don’t get in the way of him doing all the things he loves. He is doing well in a regular classroom and playing with friends in the neighborhood. But the path to this success story was long, costly, and filled with roadblocks.
The second anniversary of the Affordable Care Act (ACA) forced me to reflect on some personal and painful experiences that followed the births of my full term twin sons, 26 years ago. I never imagined that landmark legislation like the ACA would pass in my lifetime, after years of advocating for wha [...]
This webcast provides an overview of HIV drug resistance, its role in transmitting resistant HIV virus, and what clients and peers need to know about it. The webcast will also include an overview of the role of HIV biomedical interventions in reducing risk of HIV transmission.
Nationwide, there is growing interest in the use of care coordination as an integral component of comprehensive, quality care provided within the medical home model for children and youth with special health care needs (CYSHCN). A broad range of stakeholders – family members, advocates, state Titl [...]
Relief Funds pay for services families incur for their children and youth with special health care needs/disabilities that are not covered by private insurance, Medicaid, or any other public or private programs. Relief Funds function as a payer of last resort for families who struggle financially t [...]
This guide is designed for policymakers, advocates, legislators, consumers, family members, and providers – in short, for anyone interested in financing care for children and youth with special health care needs at the state level, and in particular through the Medicaid program.
Uninsured low-income CSHCN are less likely to have a usual source of care and are more likely to have unmet needs for routine medical and dental care than their insured counterparts. Unmet health care needs can be detrimental to any child; however, for CSHCN, who require more health-care services th [...]
The Catalyst Center serves as a partner with the Association of Maternal and Child Health Programs (AMCHP) and the National Academy for State Health Policy (NASHP) to form the Access to Care Core for the University of North Carolina’s National Maternal and Child Health (MCH) Workforce Developm [...]
Despite the fact that people with disabilities often need substance abuse treatment, there is little research about whether substance abuse treatment models are tailored to meet the complex needs of this population. Funded by the Robert Wood Johnson Substance Abuse Policy Research Program, we examin [...]
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