Combining sound statistical data with compelling narratives from the personal perspective of those experiencing a problem or who are impacted by a policy decision can also help inspire new champions in the work to improve coverage and financing of care for CYSHCN. This page will discuss the benefits of using statistical data and family stories in efforts made on behalf of CYSHCN, as well as provide some tips for using these tools in effective ways.
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Just the Facts: The 411 on Health Insurance for Young Adults Ages 18 – 30 in Florida
This guide is designed to provide basic information, action steps and deadlines to help young adults in Florida stay focused and on track with health insurance.
Health Care Reform and the Massachusetts CommonHealth Program: An Important Foundation to Build on for Children with Disabilities
This Catalyst Center policy brief describes the impact of the CommonHealth program and its relevance to the Massachusetts health care reform experience.
Case Study: Buying into a Medicaid Buy-in Program: The Texas Experience
Family advocacy efforts coupled with legislative support resulted in the creation and implementation of a Medicaid Buy-in program for families raising children with disabilities in Texas.
The Essential Components of Health Care Reform for Children with Special Health Care Needs (CSHCN)
As the possibility of national health care reform became a reality, the Catalyst Center identified three things children with special health care needs would need: Coverage that is universal and continuous, adequate, and affordable.
Estimating the Cost per Child Under the Family Opportunity Act’s Medicaid Buy-in Option: An Update
Previous Catalyst Center calculations of costs per child for children with disabilities eligible for Medicaid coverage under the Family Opportunity Act were derived from Congressional Budget Office (CBO) estimates. In this revised estimate, we use information from the Medicaid Statistical Information System (MSIS) State Summary Datamart.
First Edition: Breaking the Link Between Special Health Care Needs and Financial Hardship
Having health insurance doesn’t automatically protect families of children and youth with special health care needs (CYSHCN) from financial hardship. In the first edition of Breaking the Link, produced in 2009, the Catalyst Center identified three pathways that lead to financial hardship and medical debt, with examples from the lives of real families. In the second edition, produced in 2017, we revisit the impact that health care financing and coverage gaps have on the lives of real families and highlight innovative policy solutions that can improve the system of care for CYSHCN.
Slides from the accompanying webinar that took place on April 26, 2017 are also available.
Children with Special Health Care Needs Enrolled in Medi-Cal and the California Health Benefits Exchange
Legislative Policy Briefing
Designing Evaluation Studies of Care Coordination Outcomes for Children and Youth with Special Health Care Needs
Nationwide, there is growing interest in the use of care coordination as an integral component of comprehensive, quality care provided within the medical home model for children and youth with special health care needs (CYSHCN). A broad range of stakeholders – family members, advocates, state Title V Children with Special Health Care Needs program staff, health insurers, and providers – have expressed a need to the Catalyst Center to be able to evaluate the benefits of investing in care coordination. The purpose of this policy brief is to help provide some guidance in thinking through the requirements for doing so.
Mandated Benefits: Essential to Children and Youth with Special Health Care Needs
Mandated benefits are health care benefits or services that, with some important exceptions) private health insurers must cover. Every state mandates at least some health benefits, depending on emerging issues in that state.