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Webinar Series on Care Coordination for Children with Complex Health Care Needs

Sponsored by the Lucile Packard Foundation for Children’s Health (LPFCH) and the Catalyst Center, this webinar series focuses on coordinating care for children with “social complexity,” i.e., those with chronic or complex medical conditions complicated by psychosocial issues and family problems such as poverty, poor parental health, substance abuse, domestic violence, and homelessness. This webinar is a continuation of the work that began with the LPFCH’s national symposium, “Designing Systems That Work for Children with Complex Health Care Needs” (see the archived webcast and Symposium Proceedings).

Slides: Implementing Section 2703 Health Homes for Children and Youth with Special Health Care Needs: What Inquiring Minds Need to Know

Section 2703 of the ACA describes a state plan option to provide health homes for Medicaid-enrolled individuals with at least two chronic conditions, one chronic condition and the risk of developing a second, or one serious and persistent mental health condition. This presentation, given at the 2014 AMCHP conference, provides and overview of this provision of the ACA, highlights strategies states have used to include CYSHCN in their Medicaid Health Homes, efforts for sustaining the Health Home after the two years of enhanced funding ends, and lessons learned.

Affordable Care Act Fact Sheets for Families

En español
Created by the National Center for Medical Home Implementation and the Catalyst Center, these four plain language fact sheets, “Your Child’s Health and the Affordable Care Act,” explain specific provisions of the Affordable Care Act which benefit children and youth with special health care needs.

On July 20, 2015, experts from the Catalyst Center and the National Center for Medical Home Implementation shared information on how ACA provisions outlined in the above fact sheets can help families raising children with special health care needs. Slides and resources from the webinar are available below.

The Affordable Care Act and Value-Based Purchasing: What’s at Stake for Children with Medical Complexity?

The implementation of the ACA shifted the structure and design of public and private health care delivery and payment systems. In order to curb health care spending and improve quality of care and health outcomes, there has been tremendous attention to value as a criterion for health insurance options offered by payers. Value-based purchasing strategies, primarily (1) pay-for-performance (P4P); (2) accountable care organizations (ACOs), and (3) bundled payments, are geared towards achieving value by reducing costs while improving quality based on a predetermined set of performance standards including quality and cost measures. These strategies are discussed in this policy brief. 

Improving Access to Coverage for Children with Special Health Care Needs in the Face of Health Inequities: Strategies Reported By Family Leadership Organizations

The Catalyst Center interviewed staff from family leadership organizations in five states to learn about the barriers underserved families face and the strategies these organizations use to address health insurance inequities among CSHCN in their communities. This policy brief describes the strategies that help promote access to coverage and financing of care among CSHCN including racial and ethnic minority children, older children, those living in immigrant families or in families in which English is not the primary language, and those with the most significant functional limitations. 

Health Care Coverage and Financing for Children with Special Health Care Needs: A Tutorial to Address Inequities

Certain vulnerable subgroups of children with special health care needs (CSHCN) face underlying structural disadvantage in terms of health care coverage. Differences exist within the population of CSHCN based on race, ethnicity, income, immigration status, language, and level of functional difficulty. This tutorial clarifies the language used to describe these differences and provides tools and examples of policies, programs, and partnerships that users can adopt in their states to improve access to coverage and financing of care for the most vulnerable children. An accompanying interactive worksheet helps users distill the information presented to identify health care coverage and financing inequities that may exist for CSHCN in their state or organization. The completed worksheet provides information that may serve as a starting point for discussions in how to address inequities for CSHCN.
View description of webinar introducing this tutorial.

The Care Coordination Conundrum and Children and Youth with Special Health Care Needs

In a 2012 survey, families with children with special health care needs (CSHCN) identified care coordination as their top priority. At its best, care coordination is a covered service—a command center, of sorts—that addresses the interrelated medical, social, developmental, behavioral, educational, and financial needs of children and their families. But there is great confusion over who is responsible for providing care coordination services, who should pay for them, and how to get reimbursed for such services. As a result of this inefficiency, CSHCN and their families experience even greater difficulties. This report, funded by the Lucile Packard Foundation for Children’s Health, discusses why care coordination has been insufficiently financed and reimbursed to date, and what can be done to address these challenges.