A description of the challenges transitioning medically complex young adults from pediatric to adult care systems, in the words of three parents. This report was initially published in The Nurse Practitioner.
I AM THE ARCHIVE.PHP FILE
Archives
Family engagement model to support translation of evidence-based care coordination for children with medical complexity
Poster presentation at Academy Health D & I Conference, highlighting value/impact of CoIIN and Family Engagement on Team Minnesota work.
CMC CoIIN State Team Project Summary Table
This document contains summaries of each state’s aims, goals, project plan, target populations, recruitment plan, and elevator speech.
CMC CoIIN State Team One-Pagers
This document provides one-page summaries of each State Team’s project within the CoIIN.
The Category of Us: Racism and Ableism’s Impact on Families with Children with Medical Complexity
This presentation discusses intersectionality and oppression and the personal story of Debbi Harris, a representative of Family Voices Minnesota. It was originally presented at the National Center for Complex Health and Social Needs 2021 Conference.
Family-centered care for children with medical complexity: A goal-planning initiative
This document describes a family-centered goal-planning initiative, prior to the CMC CoIIN work. The learnings informed Team Minnesota’s work on the CoIIN.
Care Coordination for Children with Medical Complexity
Manuscript describing models of complex care management for CMC, description of Gillette’s complex care program, and Team MN participation in the CMC CoIIN.
Access Plan Template
A manual Word document that captures what parents identified as critical components of the shared plan of care. Team Minnesota considers this an ‘interim solution’ until an EMR-based application is built.
Complex Care Program Brochure
Part of a ‘new to program’ packet sent to new complex care program patients/families several weeks ahead of their first complex care program clinic visit.
Complex Care Program Welcome Letter
Part of a ‘new to program’ packet sent to new complex care program patients/families several weeks ahead of their first complex care program clinic visit.