The CoIIN implementation library includes products developed and tested during the course of project implementation. This library includes both network-level and state-specific materials, as well as multiple project-relevant domains to search. You can click on the boxes to the right to filter the library by domain or state team.

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13 Results Found

Collaborative Improvement and Innovation Network Improves Pediatric Family-Centered Engagement

Authors Rhonda Cady, Tricia Brisbine

Date 2022

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Family Partnership at the Clinical Setting, Minnesota

This slide deck covers Team Minnesota’s CMC CoIIN journey of family engagement and family partnership at the care delivery design level. It was originally presented at the American Case Management Association 2022 National Conference.

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CMC CoIIN Webinar: Sustaining The Family Leader Role

Authors

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Family Partnership at the Clinical Setting

Sustaining the Family Leader Role focuses on family partnership sustainability within the state teams, strides made thus far, remaining challenges, and possible paths forward. Sustaining family leader engagement in clinical settings and partnership with family-led organizations is about organizational partnerships at its core, and it requires teams to acquire additional financial resources.

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Team Kentucky Panel Discussion with Families ConverSketch

Authors Team Kentucky, ConverSketch

Date 2020

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Kentucky

At Team Kentucky’s Family Panel Discussion, parents shared how the COVID-19 pandemic had affected them, the types of financial assistance they had applied for, and their biggest concerns. This graphic recording summarizes the conversation.

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Family Focus Group Guides

Authors Health Care Delivery System Innovations for Children with Medical Complexity

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Family Partnership at the Clinical Setting

These guides, in English and Spanish, were developed by the CMC CoIIN Leadership Team for use by the state teams in conducting focus groups with parents and families. They include tips for facilitating the group, a script for starting the meeting, and questions about child quality of life and family wellbeing.

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A Global Perspective on Telemedicine: Addressing the Logistics of Coordination, Outcomes, and Satisfaction During a Pandemic

Authors Ivanora Alexander , Jonathan Borden, EdD, Patricia Purcell, MD, MBA

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Kentucky

This poster presents changes Team Kentucky made to telemedicine services during the pandemic, their learnings about using telehealth, and strategies for addressing barriers. Originally presented at the AMCHP 2021 Conference.

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The Parent Perspective Presentation

Authors Sherry Santa, Laura Warren

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Texas

Presentation about the nonprofit agency Texas Parent to Parent and its services to multiple service coordinators in Texas that work at Managed Care Organizations across the state.

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The Other Mothers

Authors Debbi Simmons Harris, MA, MS

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Minnesota

This article describes one health system’s attempt at introducing staff to the lived experience of parents of CMC, from the viewpoint of a parent of medically fragile child. She describes herself as one of many ‘uber’ parents, common in children’s hospitals. Originally published in the Pediatric Palliative Care and Hospice E-Journal.

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Family engagement model to support translation of evidence-based care coordination for children with medical complexity

Authors Rhonda Cady, Tricia Brisbine

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Minnesota

Poster presentation at Academy Health D & I Conference, highlighting value/impact of CoIIN and Family Engagement on Team Minnesota work.

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Action-oriented tools to build family trust for improved care for children with medical complexity

Authors Libbi Ethier, Bethlyn Houlihan, MSW, MPH, Cara Coleman, MPH, JD, Mary Jo Paladino, MSA

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Family Partnership at the Clinical Setting

This presentation, delivered at the National Center for Complex Health and Social Needs 2021 Conference, details how the CMC CoIIN adapted to measure families’ needs and introduces the Family Engagement in Systems Assessment Tool (FESAT) that was created in partnership with Family Voices.

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Effective Family Partnership Tools to Drive Global and Local Improvements: Learnings from the CMC CoIIN

Authors CMC CoIIN Leadership Team, ConverSketch, Family Voices National

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Covid-19, Family Leadership in Systems, Family Partnership at the Clinical Setting

This poster, created for the AMCHP 2021 conference, details the Family Engagement in Systems Assessment Tool (FESAT) process with CoIIN teams, overall FESAT findings from 3 rounds of assessment spanning the pandemic, and initial state team local action plans for targeted improvement based on the FESAT. It also shows the iterative, family-led, collaborative process employed to develop the family focus group guide, and aggregate themed analysis of cross-team results, noting contrasting post-COVID themes.

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