CMC CoIIN Implementation Library

This slide deck covers Team Minnesota’s CMC CoIIN journey of family engagement and family partnership at the care delivery design level. It was originally presented at the American Case Management Association 2022 National Conference.

This article describes one health system’s attempt at introducing staff to the lived experience of parents of CMC, from the viewpoint of a parent of medically fragile child. She describes herself as one of many ‘uber’ parents, common in children’s hospitals. Originally published in the Pediatric Palliative Care and Hospice E-Journal.

AMCHP newsletter ‘Pulse’ interview 2021 of Oregon CoIIN Implementation team members.

Sustaining the Family Leader Role focuses on family partnership sustainability within the state teams, strides made thus far, remaining challenges, and possible paths forward. Sustaining family leader engagement in clinical settings and partnership with family-led organizations is about organizational partnerships at its core, and it requires teams to acquire additional financial resources.

Presentation about the nonprofit agency Texas Parent to Parent and its services to multiple service coordinators in Texas that work at Managed Care Organizations across the state.

Poster presentation at Academy Health D & I Conference, highlighting value/impact of CoIIN and Family Engagement on Team Minnesota work.

This poster presents changes Team Kentucky made to telemedicine services during the pandemic, their learnings about using telehealth, and strategies for addressing barriers. Originally presented at the AMCHP 2021 Conference.

These guides, in English and Spanish, were developed by the CMC CoIIN Leadership Team for use by the state teams in conducting focus groups with parents and families. They include tips for facilitating the group, a script for starting the meeting, and questions about child quality of life and family wellbeing.

This presentation, delivered at the National Center for Complex Health and Social Needs 2021 Conference, details how the CMC CoIIN adapted to measure families’ needs and introduces the Family Engagement in Systems Assessment Tool (FESAT) that was created in partnership with Family Voices.

This poster, created for the AMCHP 2021 conference, details the Family Engagement in Systems Assessment Tool (FESAT) process with CoIIN teams, overall FESAT findings from 3 rounds of assessment spanning the pandemic, and initial state team local action plans for targeted improvement based on the FESAT. It also shows the iterative, family-led, collaborative process employed to develop the family focus group guide, and aggregate themed analysis of cross-team results, noting contrasting post-COVID themes.