CISWH Project Resources

This report has its origins in a one-day meeting held with an expert panel in September 2011 on risk adjustment for children and youth with special health care needs (CYSHCN). This meeting was sponsored by the Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services and facilitated by the Catalyst Center at the Boston University School of Public Health, with logistical support provided by John Snow, Incorporated.

The Catalyst Center hosted a 5-part webinar series to provide an overview of our newly released Medicaid/CHIP Tutorial, Public Insurance Programs and Children with Special Health Care Needs: A Tutorial on the Basics of Medicaid and the Children’s Health Insurance Program (CHIP). This first webinar explains how and why the tutorial was developed, gives examples of Title V and Medicaid/CHIP Partnerships, and what’s covered in the tutorial.

The Catalyst Center has created a TEFRA and FOA Medicaid Buy-in Educational Worksheet that you can use to learn about the similarities and differences between these two programs. Using the attached instructions, you can fill out the worksheet with data on the insurance status of families in your state. We hope this tool will be a good introduction to how to use data to make your case for improving coverage for children and youth with disabilities.

This presentation, developed by the National Academy for State Health Policy (NASHP) in collaboration with the Catalyst Center, aims to support Title V programs in understanding Medicaid managed care (MMC), how it impacts Children and Youth with Special Health Care Needs (CYSHCN), and how to leverage MMC to improve the care delivered to CYHSCN. Each slide contains speakers notes providing more detail on the slide contents. Title V programs can consider adapting the slide deck to present to their respective audiences. 

The supplemental resources document lists additional resources describing how to leverage Medicaid managed care to improve the care delivered to CYSHCN.

State Title V and Medicaid programs provide services for children and youth with special health care needs (CYSHCN) to support their physical, behavioral, and developmental care. States are also advancing health equity goals to address disparate outcomes experienced by people of color. With evidence of existing inequities laid bare by the COVID-19 pandemic, states are finding opportunities to unite these efforts to improve care for CYSHCN of color.

This mini-brief, developed by the National Academy for State Health Policy (NASHP) in partnership with the Catalyst Center, describes key areas where states are strengthening health equity for CYSHCN, including initiatives in family partnership, Medicaid managed care (MMC) programs, quality measurement and performance reporting, and cross-sector partnerships.

As the single largest source of health coverage for Children and Youth with Special Health Care Needs (CYSCHN), with robust benefits and cost-sharing limits, Medicaid provides critical coverage of health care services to CYSHCN. State Title V programs are uniquely positioned to collaborate with Medicaid to promote access to the system of services for CYSHCN.

The Catalyst Center hosted a webinar on June 14, 2022, that presented foundational knowledge about Medicaid for Title V staff and their allies. Catalyst Center staff explained the basics of Medicaid including the eligibility pathways to Medicaid coverage for kids and a benefit for children unique to Medicaid called EPSDT that is crucial for access to care for CYSHCN. 

Please click the links below to access the webinar recording, slide deck, and a document with follow-up resources and Q&A responses. 

This is the fourth webinar in a five-webinar series about the Catalyst Center’s latest technical assistance tool Public Insurance Programs and Children with Special Health Care Needs: A Tutorial on the Basics of Medicaid and the Children’s Health Insurance Program (CHIP).

This is the fourth webinar in a five-webinar series about the Catalyst Center’s latest technical assistance tool Public Insurance Programs and Children with Special Health Care Needs: A Tutorial on the Basics of Medicaid and the Children’s Health Insurance Program (CHIP).

The recent Child Tax Credit (CTC) expansion is expected to improve the economic security of millions of families in the U.S., including families raising children and youth with special health care needs (CYSHCN). While many families will receive the expanded tax credit automatically, others of the most vulnerable families need to take action to access the financial support.

On August 24 at 2pm ET, the Catalyst Center hosted a webinar explaining the expanded CTC and the role that Title V and Family Leader organizations might play in assisting families in accessing this support.

The webinar program featured presentations by Elaine Maag, Principal Research Associate, Tax Policy Center, Urban Institute and Brookings Institution; Stacy Collins, Associate Director, Health Systems Transformation at AMCHP; and Isabel Dickson, Economic Mobility Specialist of the Maternal and Child Health Program at the Colorado Department of Health and Environment. 

The recent Child Tax Credit (CTC) expansion is expected to improve the economic security of millions of families in the U.S., including families raising children and youth with special health care needs (CYSHCN). While many families will receive the expanded tax credit automatically, others of the most vulnerable families need to take action to access the financial support.

On August 24 at 2pm ET, the Catalyst Center hosted a webinar explaining the expanded CTC and the role that Title V and Family Leader organizations might play in assisting families in accessing this support.

The webinar program featured presentations by Elaine Maag, Principal Research Associate, Tax Policy Center, Urban Institute and Brookings Institution; Stacy Collins, Associate Director, Health Systems Transformation at AMCHP; and Isabel Dickson, Economic Mobility Specialist of the Maternal and Child Health Program at the Colorado Department of Health and Environment.