New England Children with Genetic Disorders and Health Reform: Information and Recommendations for State Policymakers

On Sept. 2, 2014, Meg Comeau, in her capacity as chair of the Health Care Access and Financing Work Group, New England Genetics Collaborative (NEGC), presented the information described in a new policy brief titled New England Children with Genetic Disorders & Health Care Reform: Information and Recommendations for State Policymakers. The webinar and policy brief outline gaps in insurance coverage and benefits experienced by children with genetic disorders and their families, based in part on the results of an online survey of families of children with genetic disorders living in the six New England states. The policy brief and webinar include recommendations for stakeholders under the ACA and beyond.