CISWH Project Resources

The Catalyst Center has created a one-page infographic illustrating important elements of value-based purchasing (VBP) for children and youth with special health care needs (CYSHCN). This is one page in a series of infographics exploring key focus areas in the world of health care financing and coverage for CYSHCN.

These one-pagers are a visually appealing and easy way to share information about the system of care for CYSHCN with stakeholders. Resources for further information about VBP and CYSHCN are listed at the bottom of the infographic.

The Catalyst Center has created a one-page infographic illustrating important elements of care coordination for children and youth with special health care needs (CYSHCN). This is one page in a series of infographics exploring key focus areas in the world of health care financing and coverage for CYSHCN.

These one-pagers are a visually appealing and easy way to share information about the system of care for CYSHCN with stakeholders. Resources for further exploration of care coordination are listed at the bottom of the infographic.

Thanks to our State Title V colleagues Sandra Broughton, Elizabeth Collins, Elaine Gabovitch, Alison Martin, Shirley Payne, and Meredith Pyle, for providing valuable feedback and reviewing this project.

The Catalyst Center has created a one-page infographic illustrating important information about inequities in coverage and financing of care for children and youth with special health care needs (CYSHCN). This is one page in a series of infographics exploring key focus areas in the world of health care financing and coverage for CYSHCN.

These one-pagers are a visually appealing and easy way to share information about the system of care for CYSHCN with stakeholders. Resources for further exploration of inequities in coverage and financing of care for CYSHCN are listed at the bottom of the infographic.

The Catalyst Center has created a one-page infographic illustrating important elements of Medicaid for children and youth with special health care needs (CYSHCN). This is one page in a series of infographics exploring key focus areas in the world of health care financing and coverage for CYSHCN.

These one-pagers are a visually appealing and easy way to share information about the system of care for CYSHCN with stakeholders. Resources for further exploration of Medicaid and CYSHCN are listed at the bottom of the infographic.

The Catalyst Center has created a one-page infographic illustrating important elements of financial hardship in families raising children and youth with special health care needs (CYSHCN). This is one page in a series of infographics exploring key focus areas in the world of health care financing and coverage for CYSHCN.

These one-pagers are a visually appealing and easy way to share information about the system of care for CYSHCN with stakeholders. Resources for further exploration of family financial hardship are listed at the bottom of the infographic.

This article, published in the December 2015 issue of the Maternal and Child Health Journal, describes the process and results of a survey of parents and caregivers whose children with disabilities were enrolled in Louisiana Family Opportunity Act (FOA) Medicaid Buy-in program. Results suggest that the Louisiana FOA program fills a niche in coverage needs among families of children with disabilities in Louisiana; however, small sample size and significant differences between the sample enrolled in the FOA and the comparison groups limits how generalizable the results are.

This article, published in the Journal of Child Health Care, describes the process and results of a survey of parents and caregivers whose children with disabilities were enrolled in CommonHealth, the state’s Medicaid Buy-in program. Results suggest that the MassHealth CommonHealth program improves access to care for children with disabilities overall; however, the article identifies barriers to address in five domains to improve accessibility.

On February 13th at the 2018 Association of Maternal & Child Health Programs (AMCHP) conference the Catalyst Center presented the results of four focus groups that were conducted with parents of children and youth with special health care needs (CYSHCN) who are from the Somali community in Boston, focusing on accessing health care for their CYSHCN.

In the context of the focus group results, we also provided results of interviews conducted with representatives of state Offices of Minority Health. We presented information on innovative strategies states are using to mitigate inequities and discussed how these strategies could address the barriers the families identified. The session was recorded, and the video will also be available here in the coming months.

In March of 2017, Catalyst Center staff gave an in-person presentation to Congressional staffers on “Pathways to Medicaid Coverage for Children and Youth with Special Health Care Needs”. This presentation included an overview of the Catalyst Center, data on publicly funded coverage and financing of care for Children with Special Health Care Needs (CYSHCN), the importance of Medicaid coverage for CYSCHN with regard to adequacy, affordability and access to care, pathways to coverage based on 1) income alone, 2) income and health status, 3) severe disability and 4) involvement with the child welfare system (foster care). Finally, a variety of Catalyst Center technical assistance resources on Medicaid and CHIP were highlighted.

On December 6, 2017, the Catalyst Center and the American Academy of Pediatrics (AAP) co-hosted a webinar on state-based innovations that support value-based purchasing (VBP) for children and youth with special health care needs (CYSHCN). Presentations from the Association of Maternal and Child Health Programs (AMCHP), and the state Title V programs in Oregon and Colorado helped to define the role of Title V programs in relation to value-based purchasing arrangements, discussed specific program examples and shared lessons learned. A YouTube video of the webinar, as well as the slides, are available below.

For further learning about VBP we have links to related reading material from the Catalyst Center: 

• The Catalyst Center and the AAP produced a special supplement to Pediatrics on VBP and value-based insurance design (VBID) and their potential implications for CYSHCN. Read the supplement, available free of charge.
• The Catalyst Center produced A Primer On Value-Based Strategies For Improving Financing Of Care For Children And Youth With Special Health Care Needs, which focuses on opportunities to increase value in spending on health services for CYSHCN through select alternative payment mechanisms and delivery innovations. It also highlights potential roles for Title V and family leaders in these efforts.
• The Affordable Care Act And Value-Based Purchasing: What’s At Stake For Children With Medical Complexity? is a Catalyst Center product which examines the VBP strategies of (1) pay-for-performance (P4P); (2) accountable care organizations (ACOs), and (3) bundled payments. These strategies are geared towards achieving value by reducing costs while improving quality based on a predetermined set of performance standards.