Resources produced by our team include hundreds of papers, peer-reviewed articles, manuals, and other products on a range of topics related to health and social needs services and supports.

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Webinar: The Role of Title V Programs and Value-Based Purchasing for Children and Youth With Special Health Care Needs

Authors Comeau, M. , Collins, S., Martin, A., Munthali, J., Terranova, L.

Date 2017

Project Catalyst Center

Keywords CYSHCN, Financing

On December 6, 2017, the Catalyst Center and the American Academy of Pediatrics (AAP) co-hosted a webinar on state-based innovations that support value-based purchasing (VBP) for children and youth with special health care needs (CYSHCN). Presentations from the Association of Maternal and Child Health Programs (AMCHP), and the state Title V programs in Oregon and Colorado helped to define the role of Title V programs in relation to value-based purchasing arrangements, discussed specific program examples and shared lessons learned. A YouTube video of the webinar, as well as the slides, are available below.

For further learning about VBP we have links to related reading material from the Catalyst Center: 

Webinar: Innovative Health Care Financing Strategies for Children and Youth with Special Health Care Needs: a supplement to the May 2017 issue of Pediatrics

Authors Anderson, B., Bachman, S. , Comeau, M. , Long, T., Terranova, L.

Date 2017

Project Catalyst Center

Keywords CYSHCN, Financing

The Catalyst Center and the American Academy of Pediatrics (AAP) produced a special supplement to Pediatrics on value-based purchasing (VBP) and value-based insurance design (VBID) and their potential implications for children and youth with special health care needs (CYSHCN). Read the supplement, available to all free of charge.

In this June 13, 2017 webinar, Catalyst Center staff along with colleagues from the AAP presented an overview of VBP/VBID and their potential implications for CYSHCN, the perspective of families of CYSHCN on value and quality, key highlights from each of the Pediatrics supplement papers, and recommended resources.

Title V and Medicaid/CHIP Interactive Worksheets

Authors Dworetzky, B.A., Charmchi, P., Ablavsky, E.

Date 2017

Project Catalyst Center

Keywords CYSHCN, Financing, Health Benefits, Maternal and Child Health, Medicaid/CHIP

The Catalyst Center created two interactive worksheets for Title V program staff, family leaders, and other stakeholders. These worksheets provide an overview of Title V, and Medicaid and the Children’s Health Insurance Program (CHIP). Each worksheet includes resources you can use to find and insert state-specific information to help demonstrate the importance of Title V, Medicaid and CHIP for children with special health care needs (CSHCN). The worksheets were created as companion materials to the Catalyst Center’s Public Insurance Programs and Children with Special Health Care Needs: A Tutorial on the Basics of Medicaid and the Children’s Health Insurance Program (CHIP).

Statement of the Problem: Health Reform, Value-Based Purchasing, Alternative Payment Strategies, and Children and Youth with Special Health Care Needs

Authors Bachman, S. , Comeau, M. , Long, T.

Date 2017

Project Catalyst Center

Keywords CYSHCN, Financing

With the increasing emphasis on value-based purchasing (VBP), policymakers must critically analyze the potential impact for children and youth with special health care needs (CYSHCN), because this group of children, by definition, uses more health care services than other children and inevitably incurs higher per person costs. We provide a history and definition of VBP and insurance design, noting its origin in employer-sponsored health insurance, and discuss various financing and payment strategies that may be pursued under a VBP framework. The relevance of these approaches for CYSHCN is discussed, and recommendations for next steps are provided. There is considerable work to be done if VBP strategies are to be applied to CYSHCN. Issues include the low prevalence of specific special health care need conditions, how to factor in a life course perspective, in which investments in children’s health pay off over a long period of time, the marginal savings that may or may not accrue, the increased risk of family financial hardship, and the potential to exacerbate existing inequities across race, class, ethnicity, functional status, and other social determinants of health.

This article was part of a May 2017 supplement in Pediatrics, produced by the Catalyst Center and the American Academy of Pediatrics (AAP). The Catalyst Center staff along with colleagues from the AAP presented a webinar with key highlights from each of the Pediatrics supplement papers.  

Webinar: Breaking the Link Between Special Health Care Needs and Financial Hardship

Authors

Date 2017

Project Catalyst Center

Keywords CYSHCN, Financial Hardship

In this webinar, which took place on April 26, 2017, Catalyst Center staff introduced the updated edition of Breaking the Link Between Special Health Care Needs and Financial Hardship. They presented about the impact that health care financing and coverage gaps have on the lives of real families and highlighted innovative policy solutions that can improve the system of care for children and youth with special health care needs (CYSHCN). 

Slides from this webinar are available below.

Public Insurance Programs and Children with Special Health Care Needs: A Tutorial on the Basics of Medicaid and the Children’s Health Insurance Program (CHIP)

Authors Rosenthal, J., Henderson, M., Dolatshahi, J., Hess, C., Tobias, C., Bachman, S. , Comeau, M. , Dworetzky, B, Wilson, K.

Date 2017

Project Catalyst Center

Keywords CYSHCN, Medicaid/CHIP

This tutorial gives a broad overview of Medicaid and CHIP, the many different populations these programs serve, the changes they are undergoing under health reform, and some details to help readers think about opportunities to improve access to coverage for CSHCN through communication and collaboration with Medicaid and CHIP staff. The tutorial starts with an overview of how definitions of CSHCN may vary by agency or program, followed by twelve major topic areas and then recommendations for steps Title V programs can take to build successful partnerships with public insurance programs.

Breaking the Link Between Special Health Care Needs and Financial Hardship

Authors Second edition (2017), Dworetzky, B., Wilson, K., Koppelman, E., Comeau, M. , Charmchi, P., Ablavsky, E., Epstein, S., Bachman, S. , First edition (2009):, Comeau, M. , Tobias, C., Bachman, S. , Jantz, K., Epstein, S., Allen, D., Hess, C.

Date 2017

Project Catalyst Center

Keywords CYSHCN, Financial Hardship, Financing

Having health insurance doesn’t automatically protect families of children and youth with special health care needs (CYSHCN) from financial hardship. In the first edition of Breaking the Link, produced in 2009, the Catalyst Center identified three pathways that lead to financial hardship and medical debt, with examples from the lives of real families. In the second edition, produced in 2017, we revisit the impact that health care financing and coverage gaps have on the lives of real families and highlight innovative policy solutions that can improve the system of care for CYSHCN.

Slides from the accompanying webinar that took place on April 26, 2017 are also available.

Refining Our Understanding of Value-based Insurance Design and High Cost Sharing on Children

Authors Ellis, R., Bachman, S. , Tan, H.

Date 2017

Project Catalyst Center

Keywords CYSHCN, Financing

There is significant concern about the financial burdens of new insurance plan designs on families, particularly families with children and youth with special health care needs (CYSHCN). With value-based insurance design (VBID) plans growing in popularity, this study examined the implications of selected VBID cost-sharing features on children.

This article was part of a May 2017 supplement in Pediatrics, produced by the Catalyst Center and the American Academy of Pediatrics (AAP). The Catalyst Center staff along with colleagues from the AAP presented a webinar with key highlights from each of the Pediatrics supplement papers.  

A Primer on Value-based Strategies for Improving Financing of Care for Children and Youth with Special Health Care Needs

Authors Comeau, M. , Bachman, S.

Date 2017

Project Catalyst Center

Keywords CYSHCN, Financing, Health Reform, Maternal and Child Health

Value-based purchasing and value-based insurance design are gaining increasing attention as strategies for reducing health care spending and improving health outcomes – “value” being the operative concept. However, there is not enough evidence to date regarding the effectiveness of these strategies; what does exist is primarily focused on interventions impacting adults. This primer focuses on opportunities to increase value in spending on health services for children and youth with special health care needs (CYSHCN) through select alternative payment mechanisms and delivery innovations, and potential roles for Title V and family leaders in these efforts.

Leveraging Title V Partnerships to Advance National Performance Measure # 15: Adequate Health Insurance

Authors Dworetzky, B.

Date 2017

Project Catalyst Center

Keywords CYSHCN, Financing, Maternal and Child Health, Oral Health Care

The Maternal and Child Health Bureau (MCHB) encourages state Title V programs to partner with families, consumer groups, and others to advance their chosen National Performance Measures (NPMs). As the MCHB-funded national center for health insurance and financing of care, the Catalyst Center researches and disseminates state-level financing strategies aimed at improving health insurance coverage for children and youth with special health care needs (CYSHCN). Our work aligns with NPM #15: “Adequate Insurance Coverage: percent of children ages 0 through 17 who are adequately insured.” This policy brief describes Title V, family leader organization, and Medicaid partnerships that can help states make progress on improving access to adequate insurance for CYSHCN.