Wednesday, October 13, 2021
At the upcoming conference Putting Care at the Center 2021, the CMC CoIIN team from the Center for Innovation in Social Work & Health (CISWH) at BU School of Social Work will present two sessions exploring innovations and barriers in care delivery for children with medical complexity.
The Category of Us: Racism and Ableism’s Impact on Families with Children with Medical Complexity
Friday, October 22, 2021
12:45–1:30 p.m. ET
Caring for children with medical complexity is challenging for families, and the challenge is compounded when facing discrimination. Hear from a parent advocate about her family’s experience at the intersection of ableism and racism. Another parent advocate and Principal Investigator of the Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CMC CoIIN) discuss how the COVID-19 pandemic has exacerbated inequities for children with medical complexity. This session will give all a chance to share and hear stories that will make care for people with complex conditions a more just and equitable sphere.
Action-Oriented Tools to Build Family Trust for Improved Care for Children with Medical Complexity
Friday, October 22, 2021
2:50–3:35 p.m. ET
In this session, participants of many different backgrounds — including clinical staff, administrators, family leaders, and consumers — will learn about building trust between interdisciplinary teams and children with medical complexity and their families. Presenters will introduce two action-oriented, consumer-led tools to build trust at individual and systems levels: family focus groups and the Family Engagement in Systems Assessment Tool (FESAT). For families of children with medical complexity who have experienced trauma, seeing systems-level transformation and improvement actively builds trust over time and ultimately promotes healing.
CMC CoIIN – the Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity – is an HRSA-funded project that aims to improve the quality of life for children with medically complex conditions, improve the well-being of their families, and increase the cost-effectiveness of their care.
Putting Care at the Center is hosted by the Camden Coalition’s National Center for Complex Health and Social Needs and will be held online on October 20-22, 2021. To attend the CMC CoIIN team’s conference sessions, please register for the conference.
You can find descriptions of the sessions and additional details in the conference agenda.