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July 27 Webinar: Coordinating Care for Children in Families with Complex Social and Health Needs – Research and Practice

Lucile Packard Foundation for Children's Health Catalyst Center - Financing Care for Children with Special Health Care Needs Webinar: Coordinating Care for Children in Families with Complex Social and Health Needs-Research and Practice Date: Wednesday, July 27, 2016 Time: 9:30 to 10:30 a.m. PT / 12:30 to 1:30 p.m. ET A link to the recording and additional resources are available on the LPFCH blog: Research and Practice Perspectives—Coordinating Care for Children with Social Complexity

The lives of children and youth with chronic or complex medical conditions often are complicated by psychosocial issues and family problems such as poverty, poor parental health, substance abuse, domestic violence, and homelessness. These children with “social complexity” are among the most frequent and highest-cost users of health care services, and their social vulnerability presents a challenge to providing high-quality care. Health care providers are increasingly being called upon to address these issues, yet resources to support them are in short supply.

This webinar is a continuation of the work that began with the Foundation’s national symposium, “Designing Systems That Work for Children with Complex Health Care Needs” (see the archived webcast and Symposium Proceedings). It builds upon the previous webinar in this series, Take Action on Care Coordination. In this webinar, two leaders in the field of social complexity discuss their work.

Speakers

 

Rita Mangione-Smith, MD, MPH.Rita Mangione-Smith, MD, MPH – Professor and Chief of the Division of General Pediatrics and Hospital Medicine at the University of Washington Department of Pediatrics. Dr. Mangione-Smith is a national leader in research on child health quality measurement and improvement, with an emphasis on evaluating patient- and family-reported outcomes. She discusses her recent work on the importance of social complexity in designing and providing health care services, especially the provision of care coordination.

Michael Harris, PhD.Michael Harris, PhD – Professor and Chief of Pediatric Psychology in the Child Development and Rehabilitation Center at the Oregon Health & Science University. Dr. Harrises discuss how a new program, Novel Interventions in Children’s Healthcare (NICH), addresses the intersection of medical and psychosocial needs of children with chronic health problems and their families. The NICH screening protocol that identifies children in need of intensive, comprehensive care management is discussed, and Dr. Harris presents data on how the program has succeeded in improving health outcomes, reducing costs, and decreasing hospitalizations for vulnerable children and youth over the past four years.

Edward L. Schor, M.D.Moderator:
Edward L. Schor, MD – senior vice president, Lucile Packard Foundation for Children’s Health.

 

 

To make the most effective use of the webinar time, we suggest reading Filling a NICH(e) [PDF] about the NICH program.

Sponsored by the Lucile Packard Foundation for Children’s Health (LPFCH) and the Catalyst Center

The Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, is a project of the Center for Advancing Health Policy and Practice at Boston University School of Public Health.

National Research Project Brings Game-Changing Interventions to Scale

Boston University School of Public Health logo.        AIDS United logo.

Twelve sites awarded millions to scale HIV-access to care interventions across the country.

 

WASHINGTON, D.C. – June 14, 2016 – AIDS United and Boston University School of Public Health’s Center for Advancing Health Policy and Practice (CAHPP) have been tapped to lead a national, first-of-its-kind project to disseminate and test evidence-informed interventions to improve access to HIV care for people who face some of the largest disparities across the United States. Using an implementation-science approach, 12 sites across the country will be supported with practical tools, technical assistance and evaluation expertise to ensure successful replication of four interventions to improve patient outcomes.

Through the Dissemination of Evidence-Informed Interventions initiative, grantee organizations will implement one of four interventions focused on the needs of women of color, people who use opioids or those who are transitioning back in to the community from jail. The interventions are:

  • Integrating Buprenorphine Treatment for Opioid Use Disorder in HIV Primary Care,
  • Transitional Care Coordination from Jail Intake to Community HIV Primary Care,
  • Enhanced Patient Navigation for Women of Color, and
  • Peer Linkage and Re-engagement of HIV-Positive Women of Color.</

The interventions to be implemented are based on past initiatives funded under the Health Resources Services Administration (HRSA), HIV/AIDS Bureau, Special Projects of National Significance (SPNS), created under federal legislation to help spur the development of innovative models of HIV care. This multi-year initiative, led by AIDS United and CAHPP, represents the first attempt to bring innovative SPNS-supported interventions to scale across the field.

“Approximately 1.2 million people live with HIV in this country and 45,000 newly contract the virus every year,” says Jane Fox, principal investigator at Boston University School of Public Health. “This work is critical in disseminating research findings from past HRSA/SPNS projects to other clinics looking for innovative models to engage and retain patients in HIV care and, ultimately, achieve viral suppression.”

AIDS United will provide implementation expertise and technical assistance for the 12 grantees and manage the contracting relationship and flow of resources to the sites, while CAHPP will provide evaluation-related technical assistance and spearhead dissemination of findings.

“We already have the data to prove the interventions work,” says AIDS United President and CEO Michael Kaplan. “This time, instead of focusing on ‘do they work,’ we’ll be looking at how to make them as turn-key as possible to get these great evidence-informed interventions into communities across the country at the forefront of this epidemic.”

Funded sites by intervention include: Integrating Buprenorphine Treatment for Opioid Use Disorder in HIV Primary Care

  • CENTRO ARARAT, Inc., FAITH Clinic – Juana Díaz, PR
  • The MetroHealth System – Cleveland, OH
  • University of Kentucky Research Foundation, through the Bluegrass Care Clinic at UKHealthcare and the Center for Health Services Research– Lexington, KY

Transitional Care Coordination from Jail Intake to Community HIV Primary Care

  • The Cooper Health System Early Intervention Program– Camden, NJ
  • The University of North Carolina at Chapel Hill, School of Medicine, Division of Infectious Diseases– Chapel Hill, NC
  • Southern Nevada Health District – Las Vegas, NV

Enhanced Patient Navigation for Women of Color

  • Grady Health System, Infectious Disease Program– Atlanta, GA
  • Keck School of Medicine at University of Southern California – Los Angeles, CA
  • Newark Beth Israel Medical Center, a part of the RWJBarnabas Health System– Newark, NJ

Peer Linkage and Re-engagement of HIV-Positive Women of Color

  • AIDS Care Group – Chester, PA
  • Howard Brown Health– Chicago, IL
  • Meharry Medical College– Nashville, TN

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About AIDS United:

Created by a merger between the National AIDS Fund and AIDS Action in late 2010, AIDS United’s mission is to end the AIDS epidemic in the United States, through strategic grant-making, capacity building, formative research and policy. AIDS United works to ensure access to life-saving HIV/AIDS care and prevention services and to advance sound HIV/AIDS-related policy for U.S. populations and communities most impacted by the epidemic. To learn more about AIDS United, visit: www.aidsunited.org.

About CAHPP:

Boston University School of Public Health’s Center for Advancing Health Policy and Practice (formerly Health & Disability Working Group) is focused on building policies and practices that improve the well-being of those who are often overlooked in the health care discussion–children and adults with special health care needs, people living with HIV and other chronic diseases, or those facing issues of substance use, mental health, and homelessness. We foster partnerships with these communities in all our work. To learn more, visit: www.cahpp.org.

Contacts: Erin Nortrup, Senior Program Manager, AIDS United Ph: 202-408-4848 ext. 259 [email protected] Jane Fox, Principal Investigator, The Dissemination and Evaluation Center, CAHPP Ph: 617-638-1937 [email protected]

SEE ALSO

June 20 Webinar: Addressing Health Coverage Inequities among CSHCN in Your State

Concerned about health coverage inequities among CSHCN in your state? The Catalyst Center has created Health Care Coverage and Financing for Children with Special Health Care Needs: A Tutorial to Address Inequities to help Maternal and Child Health (MCH) leaders, family leaders, and other stakeholders understand and address health care coverage inequities that exist among vulnerable subgroups of CSHCN.

On Monday, June 20, 2016 the Catalyst Center conducted an hour-long webinar to “get acquainted” with this new tutorial. MCH staff from Alaska and Michigan shared strategies they used to work towards health equity for CSHCN in their states.

Webinar Recording and Slides

MCH staff from the Alaska Title V Program discussed a partnership that improved health outcomes for children in tribal communities.

  • Becky Morisse, Alaska CYSHCN Director
  • Stephanie Wrightsman-Birch, MCH Director 

MCH staff from the Michigan Title V Program discussed the implementation of Practices to Reduce Infant Mortality through Equity (PRIME) within the Michigan Children’s Special Health Care Services (CSHCS) Division.

  • Brenda Jegede, Coordinator for PRIME
  • Lonnie Barnett, Michigan CSHCS Division and Title V CYSHCN Director

The Catalyst Center is the national center for health insurance and financing for children and youth with special health care needs.

MCH Learning Lab Equips Title V Professionals to Address National Performance Measure on Inadequate Insurance

CAHPP Director presents strategies to decrease uninsurance and underinsurance among children On May 23, Sara Bachman, Director of the Center for Advancing Health Policy and Practice, Boston University School of Public Health and Principal Investigator, Catalyst Center, participated in an online learning lab for Title V professionals. The fourth in a series hosted by the Maternal and Child Health Bureau, Health Resources and Service Administration (HRSA), U.S. Department of Health and Human Services, the evidence-based strategy measure learning lab tapped experts to discuss strategies to address three national performance measures: NPM 13 (oral health), NPM 14 (smoking) and NPM 15 (adequate insurance). Bachman presented Catalyst Center research relevant to NPM 15, which addresses the percent of children age 0-17 who are adequately insured. Based on Catalyst Center research on 13 states and 2 territories that identified NPM 15 as part of their plan, Bachman highlighted similarities in areas of focus and outlined strategies to decrease the percentage of children without insurance and without adequate insurance. Access the recorded webinar on the HRSA website. The complete slideset can also be downloaded from the recording. Bachman’s presentation runs from 53-1:07 minutes.

“In terms of health policy, what works for kids with special health care needs works for all kids.”

– Sara Bachman
Director, CAHPP, Boston University School of Public Health and Principal Investigator, Catalyst Center

Building on What Works to Improve Health Outcomes for People Living with HIV

The Center for Advancing Health Policy and Practice (CAHPP) is in the first year of the five-year Dissemination of Evidence Informed Interventions initiative, funded by Health Resources and Services Administration (HRSA). CAHPP will run the Dissemination and Evaluation Center (DEC) for this HRSA initiative, and will adapt four previously implemented HRSA interventions for replication, design a multisite evaluation plan, study the implementation of each intervention using an Implementation Science framework, and disseminate successful practices to clinics and other HIV caregivers.

Two of the four earlier interventions were implemented by CAHPP (then known as the Health & Disability Working Group):

Learn more about the Dissemination and Evaluation Center.

BU School of Public Health Announcement: Researchers Receive $2.5M in Funding to Improve HIV Care

CAHPP works with three clinics to empower peers to support patients living with HIV

No one understands the reality of HIV better than someone who lives with it every day. This is the concept at the heart of the MAI SPNS Peer Re-Engagement Project. The Center for Advancing Health Policy and Programs(CAHPP) partnered with three clinics to evaluate the effectiveness of an intervention that employed trained peers—specially trained racial and ethnic minority community members who are living with HIV/AIDS—to lend support to people at high risk of not staying in HIV care.

The three sites — Care Resource in Miami, FL, Brooklyn Hospital PATH Center in New York, and Puerto Rico Community Network for Clinical Research on AIDS, Inc. (PR CoNCRA) in San Juan, PR — are community-based clinics in areas with a high incidence of HIV. Despite the vastly different settings, these clinics all serve a vulnerable minority patient population who often face challenges of mental health or substance use issues, domestic violence, or unstable housing.

With funding from the U.S. Department of Health and Human Services, Health Resources and Services Administration’s HIV/AIDS Bureau, National Training and Technical Assistance, CAHPP trained peers to reach out to patients who were at risk or had fallen out of care. Over 12 months, the peers met with patients one on one to provide emotional and practical support as they educated and coached patients in managing their HIV care. CFHSI collected extensive data from the sites to evaluate the effectiveness of the intervention. These data are now being analyzed, with results anticipated for later this year. CAHPP and the three clinics also collaborated to create a set of resources for organizations who would like to develop their own peer interventions: an intervention manual, a five-day peer training curriculum, and a peer supervisor training curriculum, all available on our website in English and Spanish.