Beyond COVID-19: Perspectives on Telehealth from CMC CoIIN Providers and Families

The Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CMC CoIIN) had the unique opportunity to study the experiences of health care providers and families of CMC in 2020 as care delivery quickly transitioned to telehealth. Now, as in-person services have returned, reflecting on what we have learned can help shape the future of telehealth for CMC.

This package includes:

  1. A telehealth learnings infographic on strategies for success, family perspectives, and centering equity.
  2. A short podcast interview with the Kentucky CMC CoIIN Team about their experience expanding telehealth during the COVID-19 shut down and the benefits of telehealth for children and families they serve.
    1. Podcast Producer/Host: Candace Jarzombek, Graduate Research Fellow
    2. Featuring:
      1. Donna Croslin, Nurse Administrator
      2. Davenna Bales, Nurse Administrator
      3. Sondra Gilbert, Director, Family 2 Family Information Center & Parent Consultant
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CMC CoIIN Project Impact Infographic

This infographic highlights the work that the Boston University leadership team and each of the 10 state teams have completed since the start of the project in 2017.

COVID-19 Resources for Children and Youth with Special Health Care Needs Library Archive

The Catalyst Center curated a collection of COVID-19 resources from numerous reputable organizations on a variety of financing and coverage related topics. This resource library previously was available as a unique page on the Catalyst Center website. In April 2022, the Catalyst Center decided to archive these resources and highlight information related to the end of the COVID-19 Public Health Emergency, available here. The resources in this archive document were last reviewed on April 26, 2022.

Unwinding the Maintenance of Effort Requirement at the end of the Public Health Emergency (PHE): The Role of Title V Programs

Under the Families First Coronavirus Response Act, state Medicaid programs are eligible to receive an additional 6.2 percent federal funding match provided they meet certain Maintenance of Effort (MOE) requirements. One of these requirements includes providing continuous eligibility to enrollees through the end of the month in which the Public Health Emergency (PHE) ends. After the PHE expires, states will need to redetermine the eligibility of over 80 million Medicaid enrollees, including an estimated 37.3 million children.

This Catalyst Center explainer describes how the end of the MOE requirement under the PHE could impact children and youth with special health care needs (CYSHCN), and outlines specific actions state Title V programs can take to help ensure continuous coverage for CYSHCN.

Effective Family Partnership Tools to Drive Global and Local Improvements: Learnings from the CMC CoIIN

This poster, created for the AMCHP 2021 conference, details the Family Engagement in Systems Assessment Tool (FESAT) process with CoIIN teams, overall FESAT findings from 3 rounds of assessment spanning the pandemic, and initial state team local action plans for targeted improvement based on the FESAT. It also shows the iterative, family-led, collaborative process employed to develop the family focus group guide, and aggregate themed analysis of cross-team results, noting contrasting post-COVID themes.