This slide deck, presented during a topical conference call the by the Catalyst Center, explains the benefits of the Family Opportunity Act (FOA) and the different ways states can implement this important state option for extending Medicaid to children with disabilities. It also highlights the differences between the FOA, waivers, and TEFRA/Katie Beckett.
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Risk Adjustment and Other Financial Protections for Children with Special Health Care Needs in Our Evolving Health Care System
This paper reviews issues to consider with regard to risk-adjustment strategies that address the needs of CYSHCN.
Medicaid and CHIP: A Tutorial on Coverage for Children and Youth with Special Health Care Needs (CYSHCN)
This tutorial gives a broad overview of Medicaid and CHIP, the many different populations these programs serve, the changes they are undergoing under health reform, and some details to help readers think about opportunities to improve access to coverage for CYSHCN through communication and collaboration with Medicaid and CHIP staff. The tutorial starts in section 1 with an overview of how definitions of CYSHCN may vary by agency or program. This is followed by eleven additional sections that address major topic areas and recommendations for steps Title V programs can take to build successful partnerships with public insurance programs.
The ABCs of the ACA for CYSHCN.
On Nov. 17, 2013, the Catalyst Center presented a workshop about select provisions of the Affordable Care Act and the implications for children and youth with special health care needs as part of the pre-conference activities at the AUCD (Association of University Centers on Disabilities) conference in Washington D.C.
The ACA and Its Implications for Children with Hearing Needs
This presentation outlines the basics of the Affordable Care Act (ACA) from the perspective of coverage and benefits for children with special health care needs (CSHCN), touching on health care delivery and payment reform. This was the closing plenary presentation of the 13th Annual Early Hearing Detection & Intervention Meeting, held on April 15, 2014.
Financing Pediatric Palliative and Hospice Care Programs
Originally published in the April 2011 issue of the Catalyst Center Coverage e-newsletter, this article focuses on financing mechanisms for pediatric palliative and hospice care programs and provides some state-specific examples of noteworthy strategies for financing pediatric palliative care programs that can be replicated.
The Affordable Care Act: a Side-by-Side Comparison of Major Provisions and the Implications for Children and Youth with Special Health Care Needs
This brief offers a concise description of select provisions in the Patient Protection and Affordable Care Act (ACA) with a side-by-side analysis of what they may mean for children and youth with special health care needs (CYSHCN) and their families.
The Massachusetts Child Psychiatry Access Project: Combining Innovation and Collaboration to Enhance Children’s Mental Health Services in the Primary Care Setting
In this February issue of the Catalyst Center e-newsletter, we highlighted the Massachusetts Child Psychiatry Access Project, or MCPAP, as a best practice in increasing access to mental health services for the children who need them. Initiated in Massachusetts in 2004, the MCPAP model has since been implemented in nine other states and is in the planning phase in three more. It is recognized by families and practitioners alike as a best practice in increasing access and quality of mental health care services for children.
The Affordable Care Act and Children with Special Health Care Needs: An Analysis and Steps for State Policymakers
The Affordable Care Act (ACA) provides states with important tools to help children and youth with special health care needs (CSHCN) and their families access coverage that is universal and continuous, adequate and affordable. This paper developed by the National Academy for State Health Policy (NASHP) for the Catalyst Center reviews and analyzes key provisions of the ACA relevant for CYSHCN to help inform state policymakers’ decisions in implementing health care reform.
As a companion activity to the release of this publication, NASHP and the Catalyst Center hosted a joint webcast in January 2011. Policy experts from the NASHP and Catalyst Center teams presented highlights from their analysis. A panel of state and federal officials shared their perspectives on the report.
Dancing with Data: Using data to support your message
Combining sound statistical data with compelling narratives from the personal perspective of those experiencing a problem or who are impacted by a policy decision can also help inspire new champions in the work to improve coverage and financing of care for CYSHCN. This page will discuss the benefits of using statistical data and family stories in efforts made on behalf of CYSHCN, as well as provide some tips for using these tools in effective ways.