Beyond COVID-19: Perspectives on Telehealth from CMC CoIIN Providers and Families

The Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CMC CoIIN) had the unique opportunity to study the experiences of health care providers and families of CMC in 2020 as care delivery quickly transitioned to telehealth. Now, as in-person services have returned, reflecting on what we have learned can help shape the future of telehealth for CMC.

This package includes:

  1. A telehealth learnings infographic on strategies for success, family perspectives, and centering equity.
  2. A short podcast interview with the Kentucky CMC CoIIN Team about their experience expanding telehealth during the COVID-19 shut down and the benefits of telehealth for children and families they serve.
    1. Podcast Producer/Host: Candace Jarzombek, Graduate Research Fellow
    2. Featuring:
      1. Donna Croslin, Nurse Administrator
      2. Davenna Bales, Nurse Administrator
      3. Sondra Gilbert, Director, Family 2 Family Information Center & Parent Consultant

Plenary Session Recording: “Focus on Equity: Getting Our Own House in Order”

Amy Houtrow shares about centering health equity in pediatric complex care on Day 2 (June 9th, 2022) of the National Convening on the Future of Care for Children with Medical Complexity

Presenter: Amy Houtrow, MD, Ph.D., MPH Vice-Chair for Pediatric Rehabilitation Associate Professor of Physical Medicine and Rehabilitation and Pediatrics Vice-Chair for Quality in the Department of Physical Medicine and Rehabilitation at the University of Pittsburgh

Strategies for State Title V and Medicaid Programs to Promote Health Equity for Children of Color with Special Health Care Needs

State Title V and Medicaid programs provide services for children and youth with special health care needs (CYSHCN) to support their physical, behavioral, and developmental care. States are also advancing health equity goals to address disparate outcomes experienced by people of color. With evidence of existing inequities laid bare by the COVID-19 pandemic, states are finding opportunities to unite these efforts to improve care for CYSHCN of color.

This mini-brief, developed by the National Academy for State Health Policy (NASHP) in partnership with the Catalyst Center, describes key areas where states are strengthening health equity for CYSHCN, including initiatives in family partnership, Medicaid managed care (MMC) programs, quality measurement and performance reporting, and cross-sector partnerships.

Webinar: The Expanded Child Tax Credit: Implications for Families Raising Children and Youth with Special Health Care Needs (CYSHCN)

The recent Child Tax Credit (CTC) expansion is expected to improve the economic security of millions of families in the U.S., including families raising children and youth with special health care needs (CYSHCN). While many families will receive the expanded tax credit automatically, others of the most vulnerable families need to take action to access the financial support.

On August 24 at 2pm ET, the Catalyst Center hosted a webinar explaining the expanded CTC and the role that Title V and Family Leader organizations might play in assisting families in accessing this support.

The webinar program featured presentations by Elaine Maag, Principal Research Associate, Tax Policy Center, Urban Institute and Brookings Institution; Stacy Collins, Associate Director, Health Systems Transformation at AMCHP; and Isabel Dickson, Economic Mobility Specialist of the Maternal and Child Health Program at the Colorado Department of Health and Environment. 

Below, you can access a recording of the webinar, presentation slides, and a page of resources related to the expanded CTC. 

The Role of State Medicaid and Title V Program Definitions of Children and Youth with Special Health Care Needs in the Provision of Services and Supports

This issue brief, written in partnership with the National Academy for State Health Policy (NASHP), describes how states define CYSHCN within Medicaid and Title V CYSHCN programs and explores the implications of these definitions. Federal and state program approaches to defining children and youth with special health care needs (CYSHCN) can impact how they determine eligibility for health care services and supports (e.g., care coordination), evaluate the impact of services, and measure outcomes.  The brief presents an analysis of data gathered through administrative and interview data from seven states (AZ, FL, NY, OH, OR, UT, and VA), and presents state considerations for establishing and implementing definitions of CYSHCN.

AMCHP Conference Workshop: Seeing Is Believing

On March 10th at the 2019 Association of Maternal & Child Health Programs (AMCHP) conference, the Catalyst Center presented an infographic series on the fundamentals of financing the system of care for CYSHCN.

The presentation reviews the rationale for the infographic series, key content in each infographic, and explores how infographics can be used to communicate effectively with various stakeholders.

Critical Elements for Financing the System of Care for CYSHCN: An Infographic Series

The Catalyst Center has created an infographic series exploring key focus areas in the world of health care financing and coverage for children and youth with special health care needs (CYSHCN). Each infographic offers a concise look at a complex issue from the perspective of CYSHCN, their families, payers and policymakers, and providers.

These one-pagers are a visually appealing and easy way to share information about the system of care for CYSHCN with stakeholders. Resources for further topic exploration are listed at the bottom of the infographic. Infographic topics include: Medicaid, pathways to Medicaid coverage, EPSDT, inequities in coverage and financing, family financial hardship, the importance of partnerships, family engagement, value-based purchasing, and care coordination.

Thanks to the following family leaders and Title V colleagues for reviewing this project and providing valuable feedback: Cara Coleman, Donene Feist, Janis Guerney, Rylin Rodgers, Nora Wells, Sandra Broughton, Elizabeth Collins, Elaine Gabovitch, Alison Martin, Shirley Payne, and Meredith Pyle.