New England Children with Genetic Disorders and Health Reform: Information and Recommendations for State Policymakers

On Sept. 2, 2014, Meg Comeau, in her capacity as chair of the Health Care Access and Financing Work Group, New England Genetics Collaborative (NEGC), presented the information described in a new policy brief titled New England Children with Genetic Disorders & Health Care Reform: Information and Recommendations for State Policymakers. The webinar and policy brief outline gaps in insurance coverage and benefits experienced by children with genetic disorders and their families, based in part on the results of an online survey of families of children with genetic disorders living in the six New England states. The policy brief and webinar include recommendations for stakeholders under the ACA and beyond.

The Affordable Care Act: A Working Guide for MCH Professionals

This guide, developed by the Access to Care Core (Catalyst Center, AMCHP and NASHP) of the National MCH Workforce Development Center, provides the building blocks for current and future Maternal and Child Health professionals to learn the basics of the Affordable Care Act and its implications for Title V programs.

Issue Brief: The Affordable Care Act and Children and Youth with Autism Spectrum Disorder and Other Developmental Disabilities

The Catalyst Center has developed a new report for the Association of Maternal & Child Health Programs (AMCHP) that offers a brief description of selected provisions in the ACA that have implications for children with ASD/DD. It describes how state Title V maternal and child health (MCH) programs can maximize opportunities under the ACA to develop and strengthen systems of care for children and youth with ASD/DD.

The ABCs of the ACA for CYSHCN.

On Nov. 17, 2013, the Catalyst Center presented a workshop about select provisions of the Affordable Care Act and the implications for children and youth with special health care needs as part of the pre-conference activities at the AUCD (Association of University Centers on Disabilities) conference in Washington D.C.