Resources produced by our team include hundreds of papers, peer-reviewed articles, manuals, and other products on a range of topics related to health and social needs services and supports.

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Webinar: The Expanded Child Tax Credit: Implications for Families Raising Children and Youth with Special Health Care Needs (CYSHCN)

Authors Catalyst Center

Date 2021

Project Catalyst Center

Keywords CYSHCN, Financial Hardship, Health Equity, Maternal and Child Health

The recent Child Tax Credit (CTC) expansion is expected to improve the economic security of millions of families in the U.S., including families raising children and youth with special health care needs (CYSHCN). While many families will receive the expanded tax credit automatically, others of the most vulnerable families need to take action to access the financial support.

On August 24 at 2pm ET, the Catalyst Center hosted a webinar explaining the expanded CTC and the role that Title V and Family Leader organizations might play in assisting families in accessing this support.

The webinar program featured presentations by Elaine Maag, Principal Research Associate, Tax Policy Center, Urban Institute and Brookings Institution; Stacy Collins, Associate Director, Health Systems Transformation at AMCHP; and Isabel Dickson, Economic Mobility Specialist of the Maternal and Child Health Program at the Colorado Department of Health and Environment. 

Below, you can access a recording of the webinar, presentation slides, and a page of resources related to the expanded CTC. 

Quality Improvement to Support the Transition from Pediatric to Young Adult Health Care: Experiences of the Oregon Children with Medical Complexity

Authors Stacy Collins

Date 2021

Project CoIIN to Advance Care for CMC

Keywords Family Leadership in Systems, Oregon

AMCHP newsletter ‘Pulse’ interview 2021 of Oregon CoIIN Implementation team members.


Strengthening Title V – Medicaid Managed Care Collaborations to Improve Care for CYSHCN

Authors Eskedar Girmash, Emily Creveling, MSW

Date 2021

Project Catalyst Center

Keywords CYSHCN, Financing, Medicaid/CHIP

Forty-seven states use some form of managed care to serve children and youth with special health care needs (CYSHCN) enrolled in Medicaid. State Title V programs, which are required to use 30 percent of their funds for programs for CYSHCN and their families, may also serve these same children. By working collaboratively, Medicaid agencies, Medicaid managed care organizations (MCOs), and state Title V programs can expand their individual capacities to strengthen the system of services for CYSHCN.

This mini-brief, written in partnership with the National Academy for State Health Policy (NASHP), describes how such partnerships can contribute to reductions in duplication of services, en­hanced care coordination efforts, and the development of cross-agency programmatic supports to meet the physical, social, emotional, behavioral, and socioeconomic needs of Medicaid-enrolled CYSHCN and their families. 

Strategies for State Title V and Medicaid Programs to Promote Health Equity for Children of Color with Special Health Care Needs

Authors Emily Creveling, MSW

Date 2021

Project Catalyst Center

Keywords CYSHCN, Financing, Health Equity, Medicaid/CHIP

State Title V and Medicaid programs provide services for children and youth with special health care needs (CYSHCN) to support their physical, behavioral, and developmental care. States are also advancing health equity goals to address disparate outcomes experienced by people of color. With evidence of existing inequities laid bare by the COVID-19 pandemic, states are finding opportunities to unite these efforts to improve care for CYSHCN of color.

This mini-brief describes key areas where states are strengthening health equity for CYSHCN, including initiatives in family partnership, Medicaid managed care (MMC) programs, quality measurement and performance reporting, and cross-sector partnerships.

State Definitions of Medical Necessity Under the Medicaid EPSDT Benefit

Authors NASHP

Date 2021

Project Catalyst Center

Keywords CYSHCN, Financing, Health Benefits, Medicaid/CHIP

State Medicaid programs are required to provide Medicaid enrollees under age 21 with comprehensive and preventive health care services through the Early Screening and Periodic Screening, Diagnostic and Treatment (EPSDT) benefit. Federal law requires states to cover “medically necessary services” under the EPSDT benefit “whether or not such services are covered under the State plan.”  The federal statute does not define “medical necessity” but instead describes a broad standard for coverage. States can, therefore, establish their own parameters for medical necessity decisions so long as those parameters are not more restrictive than the federal statute. In March 2021, with support from the Catalyst Center, The National Academy for State Health Policy (NASHP) conducted a 50-state scan of medical necessity definitions used by state Medicaid programs for their EPSDT benefit, updating a previous scan conducted in 2013. This resource presents definitions of medical necessity from all 50 states and the District of Columbia.