CHW National Library

This article describes one health system’s attempt at introducing staff to the lived experience of parents of CMC, from the viewpoint of a parent of medically fragile child. She describes herself as one of many ‘uber’ parents, common in children’s hospitals. Originally published in the Pediatric Palliative Care and Hospice E-Journal.

Children’s Comprehensive Care (CCC) summarizes the responsibilities of both the medical home (CCC) and the MCO (Managed Care Organization) for the delegation of service coordination tasks. Prior to the MCO committing to reimbursing the medical home for service coordination tasks, they wanted HHSC to approve the arrangement.

Sample of the parent view of the plan of care and role clarification.

Colorado Durable Medical Equipment eligibility, documentation, and process for diapers, wheelchairs, supplemental oral nutrition, enteral nutrition, suction machine, disability placards, and synagis.

Debbi Simmons Harris tells the story of the presentation on racism and The Category of Us. This commentary was originally published in the Complex Care Journal.

A description of the challenges transitioning medically complex young adults from pediatric to adult care systems, in the words of three parents. This report was initially published in The Nurse Practitioner.

Poster presentation at Academy Health D & I Conference, highlighting value/impact of CoIIN and Family Engagement on Team Minnesota work.

This document provides a summary of the CMC CoIIN and descriptions of state team accomplishments and products/outputs created during years 1 and 2 of the project.

This presentation describes who CMC are, important aspects of Medicaid for CMC and their families, the state of current systems of care, and promising practices at the policy and practice levels.

This slide deck was presented at the April 27, 2019 Pediatric Academic Societies meeting of the Complex Care Special Interest Group. It summarizes the CMC CoIIN and provides an overview of the Team Indiana project.