The Other Mothers
Authors Debbi Simmons Harris, MA, MS
Project CoIIN to Advance Care for CMC
Keywords Family Leadership in Systems, Minnesota
This article describes one health system’s attempt at introducing staff to the lived experience of parents of CMC, from the viewpoint of a parent of medically fragile child. She describes herself as one of many ‘uber’ parents, common in children’s hospitals. Originally published in the Pediatric Palliative Care and Hospice E-Journal.