CHW National Library

Sample of the parent view of the plan of care and role clarification.

This infographic highlights the work that the Boston University leadership team and each of the 10 state teams have completed since the start of the project in 2017.

This slide deck covers Team Minnesota’s CMC CoIIN journey of family engagement and family partnership at the care delivery design level. It was originally presented at the American Case Management Association 2022 National Conference.

This slide deck describes a very successful Team Minnesota care delivery initiative, to quantify care coordination need after the initial complex care clinic visit. It was originally presented at the American Case Management Association 2022 National Conference.

Amy Houtrow shares about centering health equity in pediatric complex care on Day 2 (June 9th, 2022) of the National Convening on the Future of Care for Children with Medical Complexity

Presenter: Amy Houtrow, MD, Ph.D., MPH Vice-Chair for Pediatric Rehabilitation Associate Professor of Physical Medicine and Rehabilitation and Pediatrics Vice-Chair for Quality in the Department of Physical Medicine and Rehabilitation at the University of Pittsburgh

The federal Advancing Care for Exceptional (ACE) Kids Act became law in 2019 and aims to provide access to a high quality, well-coordinated system of care for children with medical complexity (CMC) and their families. This policy brief describes the background on the need for the ACE Kids legislation and outlines three benefits for states that choose to implement it. We focus on patient-centered health home models of care coordination with a comprehensive care plan that addresses all service needs.

This recorded presentation describes Team Minnesota’s plan for helping patients transition from pediatric to adult care. It was originally presented to Gillette Children’s Specialty Healthcare.

These graphics visually depict a patient’s contacts with different services within the health system.

The BU Leadership Team, Team Kentucky, and state team members take a deeper dive into developing impact statements and dissemination materials.

This article describes one health system’s attempt at introducing staff to the lived experience of parents of CMC, from the viewpoint of a parent of medically fragile child. She describes herself as one of many ‘uber’ parents, common in children’s hospitals. Originally published in the Pediatric Palliative Care and Hospice E-Journal.