Resources produced by our team include hundreds of papers, peer-reviewed articles, manuals, and other products on a range of topics related to health and social needs services and supports.

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Unwinding the Maintenance of Effort Requirement at the end of the Public Health Emergency (PHE): The Role of Title V Programs

Authors Catalyst Center

Date 2022

Project Catalyst Center

Keywords Covid-19, CYSHCN, Financing, Medicaid/CHIP

Under the Families First Coronavirus Response Act, state Medicaid programs are eligible to receive an additional 6.2 percent federal funding match provided they meet certain Maintenance of Effort (MOE) requirements. One of these requirements includes providing continuous eligibility to enrollees through the end of the month in which the Public Health Emergency (PHE) ends. After the PHE expires, states will need to redetermine the eligibility of over 80 million Medicaid enrollees, including an estimated 37.3 million children.

This Catalyst Center explainer describes how the end of the MOE requirement under the PHE could impact children and youth with special health care needs (CYSHCN), and outlines specific actions state Title V programs can take to help ensure continuous coverage for CYSHCN.

The American Rescue Plan Act: Opportunities for Improving Home- and Community-Based Services for Children and Youth with Special Health Care Needs

Authors Catalyst Center

Date 2021

Project Catalyst Center

Keywords Covid-19, CYSHCN, Financing, Medicaid/CHIP

The American Rescue Plan Act (ARPA) was signed into law on March 11, 2021. Provisions in this legislation have the potential to expand and strengthen Home- and Community-Based Services (HCBS) for children enrolled in Medicaid, in turn strengthening the systems of services for children and youth with special health care needs (CYSHCN).

The ARPA gives states the option of receiving extra financial support for providing HCBS to Medicaid beneficiaries. Specifically, the law provides for a 10-percentage point increase in the state’s Federal Medical Assistance Percentage, or FMAP. States must use the additional funds they receive under the ARP FMAP increase to expand and enhance HCBS for Medicaid beneficiaries.

This Catalyst Center explainer provides an overview of the ARPA HCBS provision and its potential implications for CYSHCN.

Strategies for State Title V and Medicaid Programs to Promote Health Equity for Children of Color with Special Health Care Needs

Authors The National Academy for State Health Policy (NASHP)

Date 2021

Project Catalyst Center

Keywords CYSHCN, Financing, Health Equity, Medicaid/CHIP

State Title V and Medicaid programs provide services for children and youth with special health care needs (CYSHCN) to support their physical, behavioral, and developmental care. States are also advancing health equity goals to address disparate outcomes experienced by people of color. With evidence of existing inequities laid bare by the COVID-19 pandemic, states are finding opportunities to unite these efforts to improve care for CYSHCN of color.

This mini-brief, developed by the National Academy for State Health Policy (NASHP) in partnership with the Catalyst Center, describes key areas where states are strengthening health equity for CYSHCN, including initiatives in family partnership, Medicaid managed care (MMC) programs, quality measurement and performance reporting, and cross-sector partnerships.

Strengthening Title V – Medicaid Managed Care Collaborations to Improve Care for CYSHCN

Authors The National Academy for State Health Policy (NASHP)

Date 2021

Project Catalyst Center

Keywords CYSHCN, Financing, Medicaid/CHIP

Forty-seven states use some form of managed care to serve children and youth with special health care needs (CYSHCN) enrolled in Medicaid. State Title V programs, which are required to use 30 percent of their funds for programs for CYSHCN and their families, may also serve these same children. By working collaboratively, Medicaid agencies, Medicaid managed care organizations (MCOs), and state Title V programs can expand their individual capacities to strengthen the system of services for CYSHCN.

This mini-brief, written in partnership with the National Academy for State Health Policy (NASHP), describes how such partnerships can contribute to reductions in duplication of services, en­hanced care coordination efforts, and the development of cross-agency programmatic supports to meet the physical, social, emotional, behavioral, and socioeconomic needs of Medicaid-enrolled CYSHCN and their families. 

Family-centered care for children with medical complexity: A goal-planning initiative

Authors Kathy Lindstrom, DNP, APRN, FNP-BC, Rhonda Cady, PhD, RN, Andrea Bushaw, PhD, RN, CPNP

Date 2020

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Partnership at the Clinical Setting, Minnesota

This document describes a family-centered goal-planning initiative, prior to the CMC CoIIN work. The learnings informed Team Minnesota’s work on the CoIIN.

Resources:

Care Coordination for Children with Medical Complexity

Authors Rhonda Cady, PhD, RN, Andrea Bushaw, PhD, RN, CPNP, Heidi Davis, RN, MAN, CPNP, Julie Mills, RN, MAN, CPNP, Deana Thomasson, RN, MAN, CPNP

Date 2020

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Medical Home, Minnesota

Manuscript describing models of complex care management for CMC, description of Gillette’s complex care program, and Team MN participation in the CMC CoIIN.

Resources:

Access Plan Template

Authors CoIIN Team Minnesota

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Minnesota, Shared Plan of Care

A manual Word document that captures what parents identified as critical components of the shared plan of care. Team Minnesota considers this an ‘interim solution’ until an EMR-based application is built.

Resources:

Complex Care Program Brochure

Authors CoIIN Team Minnesota

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Medical Home, Minnesota

Part of a ‘new to program’ packet sent to new complex care program patients/families several weeks ahead of their first complex care program clinic visit.

Resources:

Complex Care Program Welcome Letter

Authors CoIIN Team Minnesota

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Medical Home, Minnesota

Part of a ‘new to program’ packet sent to new complex care program patients/families several weeks ahead of their first complex care program clinic visit.

Resources:

Webinar: The Expanded Child Tax Credit: Implications for Families Raising Children and Youth with Special Health Care Needs (CYSHCN)

Authors Catalyst Center

Date 2021

Project Catalyst Center

Keywords CYSHCN, Financial Hardship, Health Equity, Maternal and Child Health

The recent Child Tax Credit (CTC) expansion is expected to improve the economic security of millions of families in the U.S., including families raising children and youth with special health care needs (CYSHCN). While many families will receive the expanded tax credit automatically, others of the most vulnerable families need to take action to access the financial support.

On August 24 at 2pm ET, the Catalyst Center hosted a webinar explaining the expanded CTC and the role that Title V and Family Leader organizations might play in assisting families in accessing this support.

The webinar program featured presentations by Elaine Maag, Principal Research Associate, Tax Policy Center, Urban Institute and Brookings Institution; Stacy Collins, Associate Director, Health Systems Transformation at AMCHP; and Isabel Dickson, Economic Mobility Specialist of the Maternal and Child Health Program at the Colorado Department of Health and Environment. 

Below, you can access a recording of the webinar, presentation slides, and a page of resources related to the expanded CTC.