Wednesday, October 30
4:00 – 5:00 PM ET
Zoom
This café will be led by discussants Nikki Montgomery, MA, MEd, GPAC, Director of Strategy and Communications, Family Voices, mother of a child with medical complexity; and Michelle J. White, MD, MPH, Associate Professor of Pediatrics, Duke University School of Medicine. Discussants will first give examples of the pressing need to address bias in systems of care and move from a medical to social model of care, and key ways family colleagues’ lived expertise is essential to humanizing systems. Through facilitated discussion in breakouts, participants will explore and learn together tangible tools, strategies, and resources to effectively partner with families to make real progress in health equity and anti-ableism. We will reconvene the group briefly to share high-level takeaways from breakouts. This series is funded by the Lucile Packard Foundation for Children’s Health.
View the Recording
View the presentation slides here.
Discussion Materials and Resources:
Discussants:
Dr. Michelle J. White, MD, MPH
Associate Professor of Pediatrics and Assistant Professor in Population Health Sciences, Duke University School of Medicine; Associate Director, Duke Pediatric Research Scholars Program for Physician-Scientist Development
As a pediatric hospitalist, Dr. White cares for children with an array of common and rare conditions. Her research focuses on developing effective interventions to eliminate disparities in child health outcomes. She is committed to partnering with patients, families and communities to develop and test interventions tailored to the needs and strengths of groups that experience health disparities. Additionally, Dr. White supports the growth of research in hospital medicine by mentoring trainees and faculty in the application of health equity and public health frameworks to address inpatient health disparities.
Nikki Montgomery, MA, MEd, GPAC
Director of Strategy and Communications, Family Voices
Nikki’s passion for empowering youth and families spans the last two decades, during which she has been an educator, a health literacy specialist, and a patient advocate. Nikki identifies as neurodivergent and is the parent of a child with autism, complex health care needs, and a rare and disabling genetic condition which her late sister also had (RYR-1 congenital fiber-type disproportion myopathy).
She is the author of the Super Safe Kids pediatric patient safety books and two books for caregivers of children with special health care needs. Nikki currently serves on the Patient Engagement Advisory Panel for the Patient Centered Outcomes Research Institute (PCORI); the Board of Directors for The Superhero Project; and the Patient Experience Policy Forum and Global Patient and Family Advisory Boards for The Beryl Institute, and many other health advocacy roles.