CISWH Project Resources

This primer focuses on an often overlooked population of children and youth with special health care needs: children and youth in foster care.

The Catalyst Center has developed a new report for the Association of Maternal & Child Health Programs (AMCHP) that offers a brief description of selected provisions in the ACA that have implications for children with ASD/DD. It describes how state Title V maternal and child health (MCH) programs can maximize opportunities under the ACA to develop and strengthen systems of care for children and youth with ASD/DD.

This slide deck, presented during a topical conference call the by the Catalyst Center, explains the benefits of the Family Opportunity Act (FOA) and the different ways states can implement this important state option for extending Medicaid to children with disabilities. It also highlights the differences between the FOA, waivers, and TEFRA/Katie Beckett. 

This paper reviews issues to consider with regard to risk-adjustment strategies that address the needs of CYSHCN.

This tutorial gives a broad overview of Medicaid and CHIP, the many different populations these programs serve, the changes they are undergoing under health reform, and some details to help readers think about opportunities to improve access to coverage for CYSHCN through communication and collaboration with Medicaid and CHIP staff. The tutorial starts in section 1 with an overview of how definitions of CYSHCN may vary by agency or program. This is followed by eleven additional sections that address major topic areas and recommendations for steps Title V programs can take to build successful partnerships with public insurance programs.

On Nov. 17, 2013, the Catalyst Center presented a workshop about select provisions of the Affordable Care Act and the implications for children and youth with special health care needs as part of the pre-conference activities at the AUCD (Association of University Centers on Disabilities) conference in Washington D.C.

This presentation outlines the basics of the Affordable Care Act (ACA) from the perspective of coverage and benefits for children with special health care needs (CSHCN), touching on health care delivery and payment reform. This was the closing plenary presentation of the 13th Annual Early Hearing Detection & Intervention Meeting, held on April 15, 2014.

Lessons learned on developing oral health services for people living with HIV/AIDS, based upon experiences of a SPNS national research and evaluation demonstration project.

Originally published in the April 2011 issue of the Catalyst Center Coverage e-newsletter, this article focuses on financing mechanisms for pediatric palliative and hospice care programs and provides some state-specific examples of noteworthy strategies for financing pediatric palliative care programs that can be replicated.

This brief offers a concise description of select provisions in the Patient Protection and Affordable Care Act (ACA) with a side-by-side analysis of what they may mean for children and youth with special health care needs (CYSHCN) and their families.