The CoIIN implementation library includes products developed and tested during the course of project implementation. This library includes both network-level and state-specific materials, as well as multiple project-relevant domains to search. You can click on the boxes to the right to filter the library by domain or state team.

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147 Results Found

Policy Brief: Advancing Care for Exceptional (ACE) Kids Act

Authors Steve Fitton, Ben Plant, MPH

Date 2022

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords

The federal Advancing Care for Exceptional (ACE) Kids Act became law in 2019 and aims to provide access to a high quality, well-coordinated system of care for children with medical complexity (CMC) and their families. This policy brief describes the background on the need for the ACE Kids legislation and outlines three benefits for states that choose to implement it. We focus on patient-centered health home models of care coordination with a comprehensive care plan that addresses all service needs.

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Transition and You: Creating a Culture to Successfully Launch Our Patients to Adulthood with Compassion

Authors Tori Bahr, MD, Debbi Simmons Harris, MS, MA

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Partnership at the Clinical Setting, Minnesota

This recorded presentation describes Team Minnesota’s plan for helping patients transition from pediatric to adult care. It was originally presented to Gillette Children’s Specialty Healthcare.

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The Other Mothers

Authors Debbi Simmons Harris, MA, MS

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Minnesota

This article describes one health system’s attempt at introducing staff to the lived experience of parents of CMC, from the viewpoint of a parent of medically fragile child. She describes herself as one of many ‘uber’ parents, common in children’s hospitals. Originally published in the Pediatric Palliative Care and Hospice E-Journal.

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Quality Improvement to Support the Transition from Pediatric to Young Adult Health Care: Experiences of the Oregon Children with Medical Complexity

Authors Stacy Collins

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Oregon

AMCHP newsletter ‘Pulse’ interview 2021 of Oregon CoIIN Implementation team members.

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CMC CoIIN Webinar: Sustaining The Family Leader Role

Authors

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Family Partnership at the Clinical Setting

Sustaining the Family Leader Role focuses on family partnership sustainability within the state teams, strides made thus far, remaining challenges, and possible paths forward. Sustaining family leader engagement in clinical settings and partnership with family-led organizations is about organizational partnerships at its core, and it requires teams to acquire additional financial resources.

CMC CoIIN Webinar: Sustainability: Impact, Need, Data, Storytelling, & Magic

Rylin Rodgers (AUCD & CMC CoIIN National Advisory Committee) joins us to discuss launching state team sustainability planning and developing impact statements. The majority of the webinar featured state team breakout room time which was not recorded.

Support Resources for Families of Children with Special Needs

Authors Team Washington

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Partnership at the Clinical Setting, Washington

This resource sheet describes Washington-specific and national organizations that provide support for all members of the family.

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CMC CoIIN State Team Project Summary Table

Authors State Team Leadership

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Alabama, Colorado, Indiana, Kentucky, Massachusetts, Minnesota, Oregon, Texas, Washington, Wisconsin

This document contains summaries of each state’s aims, goals, project plan, target populations, recruitment plan, and elevator speech.

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