Federal Poverty Level (FPL)
The threshold used as a basis for determining eligibility for many public benefits programs, including Medicaid and CHIP. The limits are usually expressed as a percentage of the base federal poverty level. For example, in 2020 for a 4-person household, the base federal poverty guideline is $26,000, [...]
Home and Community-Based Services (HCBS) Waiver
Home and Community-Based service (HCBS) waivers allow a state to offer Medicaid beneficiaries a wide array of services in their own home or community rather than institutions or other isolated settings. These programs serve a variety of targeted populations groups, such as people with intellectual o [...]
Integrated Care Models
Private or public health service programs, often led by a primary care team (and often developed for a specific target population) that who work together with patients and families to provide a full array of coordinated services, such as medical care, mental health care, family support services, or [...]
Palliative Care
Care that focuses on improving quality of life for patients with progressive, incurable illness, focused on quality of life. For more information, see the Catalyst Center publication Financing Pediatric Palliative and Hospice Care Programs.
Parent-to-Parent (P2P) Support
P2P programs offer parent-to-parent support as a core resource for families with children who have special health care needs, disabilities, behavioral, or mental health issues. Through a one-to-one “match” experienced support parents provide emotional support to families and assist them [...]
Transition [Also Health Care Transition (HCT)]
Generally used in reference to supports and services required by youth with special health care needs as they go from pediatric to adult services, programs, or settings. Visit the Got Transition website to learn more about transition.
Relief Funds: A Safety Net for Children and Youth with Special Health Care Needs
Relief Funds pay for services families incur for their children and youth with special health care needs/disabilities that are not covered by private insurance, Medicaid, or any other public or private programs. Relief Funds function as a payer of last resort for families who struggle financially t [...]
Medical Necessity Webinar Series: Part Two Slides
In April, May, and June of 2022, the Catalyst Center and the National Coordinating Center for the Regional Genetics Networks, two programs supported by the Health Resources and Services Administration (HRSA), hosted a three-part webinar series to help the genetics community and other interested part [...]
Fact Sheet: Health Care Reform: What’s in it for Children and Youth with Special Health Care Needs?
The Patient Protection and Affordable Care Act of 2010 (ACA) contains provisions that are designed to improve major gaps in the health care coverage, financing and delivery system that prevent children and youth with special health care needs (CYSHCN) from accessing health care services or which imp [...]
Addressing Chronic Disease through Community Health Workers: A Policy and Systems-Level Approach
A CDC Division for Heart Disease and Stroke Prevention-published policy brief. Provides guidance and resources for integrating CHW into community-based efforts to prevent chronic disease. Provides general information on CHW in the U.S., then details the value and impact of CHW in preventing and mana [...]
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