A collection of news about the CMC CoIIN, community of care for CMC, family engagement, youth with special healthcare needs, and other relevant topics. Have your own news items to suggest? Email Ben anytime at [email protected].
We catalogue all CMC CoIIN Eblast-Offs, Newsletters, and Project Updates in this Box folder for your reference.
Team Minnesota initially took part in the National Care Coordination Academy (NCCA) to learn and share with others who care for similar patients. In this interview, Kari Kubiatowicz, BSN, RN, Director of Care Management at Gillette Children’s and co-leader of Minnesota’s NCCA team, discusses how her team’s work through the CMC CoIIN and the NCCA led to increased family engagement and growth of their care coordination model. This conversation has been edited for length and...... More
Team Texas participated in the National Care Coordination Academy (NCCA) to continue the family-centered care coordination work they started as part of the Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CMC CoIIN). According to Ivy Goldstein, State CSHCN Health Coordinator and CMC CoIIN Program Lead, and Rahel Berhane, MD, Medical Director of the Children’s Comprehensive Care Program, the NCCA has allowed Team Texas to further refine their care strategies...... More
Team Indiana chose to participate in the National Care Coordination Academy (NCCA) to learn and share with other care coordination innovators. In this interview, Mary Ciccarelli, MD, Clinical Director for Team Indiana, discusses how participation in the NCCA assisted in her team’s journey toward expanding care coordination services across the state. Their care coordination innovations include a training and coaching curriculum for care coordinators and Care Coordination Playbooks to facilitate system navigation. This conversation has...... More
The National Care Coordination Academy (NCCA) is a collaboration between the Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CMC CoIIN) and Boston Children's Hospital. This two-year program has assisted state teams in building sustainability for their care coordination models for CMC. In this interview, Richard Antonelli, MD and Heather Pomella, NP, Medical Director and Manager of the NCCA respectively, discuss how the CCA came to be and the impact...... More
CISWH researchers forge ahead in their work to improve the lives of children with medical complexities and their families.... More
Phoenix Children's Hospital and the Arizona state Maternal and Child Health (MCH) Title V / Children and Youth with Special Health Care Needs (CYSHCN) program collaborated to adapt and implement content from the curriculum to enhance care coordination for children with medical complexity (CMC) and their families seen at Phoenix Children's Hospital. The adaptation was very successful, and planning is underway to facilitate additional trainings on shared plans of care and family-professional partnerships with care...... More
Our very own Meg Comeau, a long-time CSHCN professional and the Principle Investigator for The Collaborative Improvement and Innovation Network to Advance Care (CoIIN) for Children with Medical Complexities (CMC), suggests that commonly used terms such as “family burden” and “medical complexity” are viewed differently by parents and professionals, with consequent impact on how services are provided. She proposes reconciling those views, with the goal of creating a better system of care. Read more.... More
Children with medical complexities (CMC) need a disproportionate share of health care services and have high mortality rates, but little is known about their end-of-life care. This article looks at the sociodemographic disparities in the intensity of end-of-life care for CMC and whether or not they are receiving high-quality and goal-concordant care end-of-life care. Read more.... More
Care Cara Coleman from Family Voices gives insight on how families of children and youth with special health care needs and disabilities play a key role in home- and community-based services for their children. Cara's blog offers a meaningful perspective on how families are not passive observers in pediatric health care, but active participants in the system. Read more.... More
This article by our own Cara Coleman was featured in the 2019 Exception Parent-Physician-Patient-People (EP) Guide: Navigating Special Needs Resources. It includes both a poignant, down-to-earth and refreshingly honest approach to the topic, as well as a host of tangible resources, not just for end of life, but for quality of life for CMC and their families.... More
Pediatricians need to be aware of the potential impact of psychosocial factors on the health and well-being of CSHCN and their families, according to a clinical report from the American Academy of Pediatrics recently published in Pediatrics. The report provides guidance for pediatric providers to facilitate and coordinate care and urges pediatric practices to collaborate with behavioral health providers, schools, social services, and other community agencies that are part of their patient’s life. Dennis Kuo...... More
This blog post shares practical, insightful suggestions from experts regarding how state Medicaid agencies can better engage patients in the policymaking and implementation process.... More
This blog post explores what Pay for Success can bring to Medicaid and how it can be integrated into managed care and value-based purchasing.... More
Researchers in Minnesota recently found that a shortage of home care nursing staff contributed to increased costs and hospital length-of-stay for medically complex children with intensive care needs. Author Rhonda Cady is a member of the Minnesota State Team.... More
The Blueprint for Complex Care provides an article and a webinar highlighting innovations and opportunities to improve care for individuals with complex health.... More
Cost and Quality: A new study suggests that a structured communication intervention involving families, physicians, and nurses on pediatric units can reduce the rate of harmful medical errors and improve family experience and communication processes. Researchers studied the intervention across seven North American hospitals and found that it was associated with a 38% reduction in harmful errors (preventable medical errors), increased family and nurse engagement, and did not change the duration of rounds or trainee...... More
Read more on the Challenges that will help moms and kids ... More
Presented by the National Center for Medical Home Implementation (NCMHI) and the National Center for Care Coordination Technical Assistance, this 2-part recorded webinar series showcases real-world experiences from diverse health care providers with the common goal of capturing the value of care coordination using the Care Coordination Measurement Tool (CCMT)*. Webinar faculty describe their objectives for measuring care coordination, experiences in implementing the tool, and the implications of capturing the value of care coordination. Webinar recordings, faculty...... More
The Care Coordination for CSHCN Challenge will award $375,000 in prizes to support the creation of tech innovations to help families and case managers with the care and coordination of children with special health care needs. What is the goal of the Care Coordination for CSHCN Challenge? This Challenge will support the development and testing of low-cost, scalable tech innovations to meet the information needs of families of CSHCN, particularly those with complex medical conditions,...... More
The FY2019 application guidance for the Children’s Hospital Graduate Medical Education program has been released. Here is the link to the HRSA webpage where you can download the NOFO https://bhw.hrsa.gov/fundingopportunities/?id=9c452296-3869-43fc-9069-9fe0f5c78d87... More
Sponsored by the Lucile Packard Foundation for Children’s Health. The slides and a recording of the conversation, including links to related information are available here.... More
Sponsored by the Lucile Packard Foundation for Children’s Health. Registration is now open, please visit lpfch.org/aapsupplement for all the details.... More
Boston (Sept. 1, 2017) – The U.S. Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau has awarded the Center for Innovation in Social Work and Health (CISWH) at the Boston University (BU) School of Social Work funding to lead a project aimed at testing and spreading innovative care delivery and payment models for children with medical complexity (CMC).... More
Project News & Archive
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