Research Priorities

The fourth of six virtual cafés will be led by discussants Jay Berry, MD, MPH, and Katie Huth, MD, MMSc, FRCPC, both of Boston Children’s Hospital. In this hour-long cafe, they will briefly share framing around the current state of research priorities for children with medical complexity, including family-driven measurement. Through facilitated discussion in breakouts, participants will explore and learn together where meaningful research opportunities lie to advance policy and practice. The group will reconvene briefly to share high-level takeaways from breakouts. Ideas will then be synthesized thematically using generative AI and distributed widely. This series is funded by the Lucile Packard Foundation for Children’s Health.

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Discussion Materials

Measuring What Matters to Children With Medical Complexity and Their Families