The Community Health Workers (CHWS) National Library has been compiled by our team from nationwide sources.

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Action-oriented tools to build family trust for improved care for children with medical complexity

Authors Libbi Ethier, Bethlyn Houlihan, MSW, MPH, Cara Coleman, MPH, JD, Mary Jo Paladino, MSA

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems, Family Partnership at the Clinical Setting

This presentation, delivered at the National Center for Complex Health and Social Needs 2021 Conference, details how the CMC CoIIN adapted to measure families’ needs and introduces the Family Engagement in Systems Assessment Tool (FESAT) that was created in partnership with Family Voices.

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Family Focus Group Infographics

Authors Christopher Louis, PhD, Meg Comeau, MHA, Bethlyn Houlihan, MSW, MPH, Randall Ellis, PhD, Steve Fitton, Libbi Ethier, Rubina Veerakone, Meghan Eaves, Jessica Flaherty

Date 2020

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Unmet Need

These infographics, aimed at providers, illustrate the five themes discovered through focus group interviews with families with CMC. The themes are types of support needed, the care team, improve care coordination, focus on the whole family, and care accessibility.

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The Category of Us: Racism and Ableism’s Impact on Families with Children with Medical Complexity

Authors Ben Plant, Bethlyn Houlihan, MSW, MPH, Debbi Harris, MS, MA

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Partnership at the Clinical Setting, Minnesota

This presentation discusses intersectionality and oppression and the personal story of Debbi Harris, a representative of Family Voices Minnesota. It was originally presented at the National Center for Complex Health and Social Needs 2021 Conference.

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Children with Medical Complexity and School Reopening Amidst COVID-19

Authors Meg Comeau, MHA

Date 2020

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Covid-19

This presentation, presented at the November 11, 2020 CYSHCNet Steering Committee meeting, covers concerns and early learnings around CMC returning to school in addition to resources on this topic.

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Caring for children with medical complexity through transformative family partnership

Authors Maureen Benschoter, MD, Rahel Berhane, MD, Meg Comeau, MHA, Bethlyn Houlihan, MSW, MPH, Judy Palfrey, MD, Sarah Perkins

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Partnership at the Clinical Setting, Massachusetts, Texas

This presentation, created for a National Center for Complex Health And Social Needs webinar, discusses findings from family focus groups conducted by CoIIN teams and how the Massachusetts and Texas teams used these findings to support family partnership.

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Tips for Recruitment

Authors CMC CoIIN Leadership Team

Date 2019

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords

This document provides tips for creating recruitment documents, developing a recruitment process, and identifying potential participants. It was created based on discussion from the January 2019 CoIIN State Team Webinar.

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Effective Family Partnership Tools to Drive Global and Local Improvements: Learnings from the CMC CoIIN

Authors CMC CoIIN Leadership Team, ConverSketch, Family Voices National

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Covid-19, Family Leadership in Systems, Family Partnership at the Clinical Setting

This poster, created for the AMCHP 2021 conference, details the Family Engagement in Systems Assessment Tool (FESAT) process with CoIIN teams, overall FESAT findings from 3 rounds of assessment spanning the pandemic, and initial state team local action plans for targeted improvement based on the FESAT. It also shows the iterative, family-led, collaborative process employed to develop the family focus group guide, and aggregate themed analysis of cross-team results, noting contrasting post-COVID themes.

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Tips for designing an inclusive interprofessional ECHO

Authors American Academy of Pediatrics, CMC CoIIN, Kirsten Goede (Graphic Designer)

Date 2021

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Leadership in Systems

This infographic, developed in partnership between the American Academy of Pediatrics and the Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CMC CoIIN), is the first of a series to be released on learnings from the Children with Medical Complexity & COVID-19 Extension for Community Healthcare Outcomes (ECHO) project. This graphic outlines tips to create an inclusive space within an ECHO, and the benefits of inclusivity to the learning space. For more information on this interprofessional ECHO, please visit the CMC CoIIN ECHO webpage.

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Family-centered care for children with medical complexity: A goal-planning initiative

Authors Kathy Lindstrom, DNP, APRN, FNP-BC, Rhonda Cady, PhD, RN, Andrea Bushaw, PhD, RN, CPNP

Date 2020

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Family Partnership at the Clinical Setting, Minnesota

This document describes a family-centered goal-planning initiative, prior to the CMC CoIIN work. The learnings informed Team Minnesota’s work on the CoIIN.

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Care Coordination for Children with Medical Complexity

Authors Rhonda Cady, PhD, RN, Andrea Bushaw, PhD, RN, CPNP, Heidi Davis, RN, MAN, CPNP, Julie Mills, RN, MAN, CPNP, Deana Thomasson, RN, MAN, CPNP

Date 2020

Project CoIIN to Advance Care for Children with Medical Complexity

Keywords Medical Home, Minnesota

Manuscript describing models of complex care management for CMC, description of Gillette’s complex care program, and Team MN participation in the CMC CoIIN.

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